Interview AN45
Brief Outline: Their son was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems' No spleen and mal-rotation of the gut. Treatment' A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD14.
Background: Diagnosed during pregnancy (22 weeks). Parents marital status' single. Occupation' Full time mum. Other children' A twin brother and one older child. The family live close by to a specialist hospital.
More about me...
The hospital advised against meeting parents of babies with Down's syndrome. She did not get in...
Text only
Read below

The hospital advised against meeting parents of babies with Down's syndrome. She did not get in...
HIDE TEXT
PRINT TRANSCRIPT
And so I did look into that quite a bit, but mainly leaflets really. The hospital gave me a lot of leaflets on congenital heart disease and so I did read up on bits of that. But I must admit I didn't actually contact any organisations. I didn't actually physically speak to anybody. At the time I don't think I wanted to - I did and I didn't.
I think maybe if somebody had contacted me, I'd have probably quite happily chatted away and asked them lots of questions, but at the time I didn't feel possibly strong enough or confident enough to actually contact them.