Welcome. Healthtalk, an award-winning charity website, lets you share in other people’s experiences of health and illness. This information is based on qualitative research into patient experiences led by experts at the University of Oxford.
We are very grateful for all the help and support we have received in producing this module.
Researchers
Lisa Hinton DPhil
Lisa is a medical sociologist. She conducted the interviews with parents and did the data analysis. She is based at the Health Experiences Research Group (HERG) in the Nuffield Department of Primary Care Health Sciences at Oxford University. Her research interests include women’s health – in particular infertility, pregnancy and childbirth – intensive care medicine and the use of the Internet as a resource for health information and support.
This module was produced by Dr Lisa Hinton, an experienced qualitative researcher with expert input and guidance from Marian Knight (Professor of Maternal and Child Population Health) and Ms Anna-May Long (Clinical Research Fellow in Paediatric Surgery) from the National Perinatal Epidemiology Unit at Oxford University, and Louise Locock (Associate Professor and Director of Applied Research, HERG, Oxford University).
Acknowledgements
We would like to thank all the parents who so kindly and generously shared their story with us.
We are grateful to all those people who gave us advice, help and guidance through the project.
Thanks also to the following health-professionals:
Mark Davenport
Consultant paediatric surgeon, King’s College Hospital, London
Tim Bradnock
Consultant paediatric surgeon, Royal Hospital for Children, Glasgow
Simon Kenny
Clinical Director of Surgery, Critical Care, Anaesthesia and Cardiac, Alder Hey Children’s NHS Foundation Trust
Janet McNally
Paediatric surgeon, University Hospitals Bristol NHS Foundation Trust
Liam McCarthy
Consultant paediatric urologist and transplant surgeon, Birmingham Children’s Hospital
Kokila Lakhoo
Consultant paediatric, Children’s Hospital, Oxford University Hospitals NHS Foundation Trust
Gregor Walker
Consultant paediatric surgeon, Royal Hospital for Children, Glasgow
Joanne Minford
Consultant paediatric surgeon, Alder Hey Children’s Hospital, Liverpool
Karen Dick
Paediatric surgical nurse specialist, Southampton Children’s Hospital
Thanks also to the following organisations and groups:
BAPS-CASS Parent Advisory Group members
Bliss charity
Gastroschisis and Exomphalos Facebook group
Exomphalos/ Omphalocele Awareness Facebook group
Gastroschisis.co.uk
GEEPs
TOFS.org.uk
CDH UK
Hirschsprung’s & Motility Disorders Support Network
Advisory Panel:
Joanne Minford
Consultant paediatric surgeon, Alder Hey Children’s Hospital, Liverpool
Tim Bradnock
Consultant paediatric surgeon, Royal Hospital for Children, Glasgow
Joanne Marshall
Parent advisory group member
Clare Lambert
Parent advisory group member
Janie French
Parent advisory group member
Joanne Shepperd
Parent advisory group member
Mike Christophers
Parent advisory group member
Supported by:
This project was funded by a National Institute for Health Research (NIHR) Professorship award to Marian Knight (Reference NIHR-RP-011-032). The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.
