Parents’ experiences of neonatal surgery

• Overview
• About the neonatal surgery study
  • What is neonatal surgery?
  • Conditions and treatment definitions for neonatal surgery
• Antenatal experiences before neonatal surgery
  • Before finding out the baby has problem - going for antenatal scans
  • Getting a diagnosis that the baby has a problem and needs neonatal surgery
  • Birth planning when something is wrong with the baby
  • Pregnancy after finding out something is wrong with the baby
  • Transferring the care of mother and baby to a specialist hospital
• Newborn babies getting ill and diagnosis after birth
  • Hirschsprung’s disease - getting ill & diagnosis
  • Hirschsprung’s disease - waiting for surgery
  • Necrotising enterocolitis (NEC) - getting ill & diagnosis
  • Getting ill & diagnosis of other conditions needing neonatal surgery
• Birth experiences of babies that needed neonatal surgery
  • Birth experiences of the parents in the neonatal surgery study
  • Postnatal care for women when a baby needs neonatal surgery
  • What happens to the baby after birth when neonatal surgery is needed
• Being in hospital with a baby that needs neonatal surgery
  • Bonding with the baby while in hospital for neonatal surgery
  • Feeding the baby before and after neonatal surgery
  • Coping when a baby needs neonatal surgery
  • Relationship with health professionals before and after neonatal surgery
  • Communicating with friends and family when a baby needs neonatal surgery
  • Daily Life – Getting into a routine at the hospital
  • Early treatments and interventions when a baby needs neonatal surgery
  • Travel to hospital & staying over when a baby needs neonatal surgery
• Surgery
  • Preparing for neonatal surgery
  • Neonatal surgery – the day of the surgery
  • Post-surgery recovery & setbacks after neonatal surgery
• Going home
  • Preparing to go home after neonatal surgery
  • Looking after a baby at home after neonatal surgery
  • Follow up and setbacks after neonatal surgery
• Emotional impact
  • Emotional impact on parents when a baby has neonatal surgery
  • Emotions, counselling and support when a baby has neonatal surgery
  • Living with uncertainty before and after neonatal surgery
• Impact
  • Impact on the child as they grow up after neonatal surgery
  • Impact on the family and friends as a child grows up after neonatal surgery
  • Finances and working life when a baby has neonatal surgery
• Information and support
  • Neonatal surgery- parents’ experiences of communication with health professionals
  • Meeting other parents when a baby has had neonatal surgery (online and face to face)
  • Understanding the diagnosis when a baby needs neonatal surgery
  • Messages to others
• People's Profiles
  • Parents
  • Health Professional
• Resources and Information
• Credits