Motor Neurone Disease (MND)
Main Researchers - Louise Locock
Louise has a PhD in social policy from LSE (1998) and joined the Health Experiences Research Group, Department of Primary Health Care, University of Oxford in 2003. She is now Deputy Research Director for the group.
Main Researchers - Carol Dumelow
Carol joined the Health Experiences Research Group, Department of Primary Health Care, University of Oxford. in 2001 as a senior researcher. She has worked in health services research for over 13 years. She gained her Ph.D. in Sociology from the University of Surrey in 1998.
Other Researchers - Alison Chapple
Alison conducted three of the interviews on the site. She is a medical sociologist and has worked at the University of Oxford since 2000 as a Senior Research Fellow and Research Lecturer.
Other Researchers - Audrey Chamberlain
Audrey conducted one of the interviews on the site and has a PhD in Sociology from the University of Leeds. Before this project she worked in adult education community development & research.
Medical Director - Health Experiences Research Group, Department of Primary Health Care, University of Oxford.
GP and University Lecturer in Primary Care, University of Oxford
Director, Health Services Research Unit, University of Oxford
Senior Lecturer, School of Nursing and Midwifery, University of Southampton
Consultant Neurologist, Oxford Radcliffe Hospitals Trust, and Senior Clinical Research Fellow, University of Oxford
Regional Care Development Adviser (NW Thames) MND Association
Phil and Janet Baker
Patient and carer representatives
Specialist MND Association Nurse, Oxford Centre for Enablement
Care Information Resources Manager, MND Association
Director of Care Development, MND Association
Acknowledgements and thanks
To all those who took part in interviews, and the MND Association Regional Care Development Advisers, GPs, consultants and specialist nurses who helped us recruit participants. We would especially like to thank the MND Association for their ongoing help with updating the site and keeping the information accurate.
NHS Service Delivery and Organisation Research and Development Programme