Interview 67

Low and high grade non-Hodgkin’s lymphoma. Treatments included surgery, watch & wait, chemotherapy, radiotherapy and autologous stem cell transplant. Complications of anaemia, pleural effusions, repeated infections and an allergic reaction. In remission.

A friend spotted a lump on her cheek. As she was having dental work she rang the on-call dentist (it was a Saturday) who prescribed antibiotics, after which her usual dentist referred her to a maxillofacial surgeon who did an x-ray and CT scan. The lump was removed and the pathology results revealed low grade non-Hodgkin’s lymphoma.

She was referred to an oncologist who recommended no treatment. Two to three years later another tumour appeared on her face so she was given chemotherapy tablets. Over the next few years tumours kept appearing, which were treated with oral chemotherapy and radiotherapy.

A high grade tumour developed in her groin and grew rapidly while awaiting surgical removal. She developed breathlessness caused by fluid on the lungs (pleural effusions), which had to be drained before the operation. While having injections to stimulate her stem cells before harvesting for a transplant she needed blood transfusions to counter anaemia. The transplant was postponed because of further breathing difficulties and she had fluid repeatedly drained off her lungs and finally an operation to stick her pleura together. During this time a cocktail of chemotherapies was administered through a Hickman line, which got infected.

Finally, with a very poor prognosis, she had her stem cell transplant. She had an allergic reaction to one substance in the high dose chemotherapy but the transplant went ahead. She contracted septicaemia afterwards and antibiotics were administered through her Hickman line since the veins on her hands had collapsed. Once at home her septecaemia recurred. She was readmitted and believes she nearly died. However, she recovered and the Hickman line was removed, which proved to have been the source of the infection. Apart from a bout of pneumonia she has been well ever since and a CT scan has shown her to be cancer-free.

While having mild chemotherapy for slow growing lymphoma a new aggressive tumour appeared in her…

Age at interview 64

Gender Female

Age at diagnosis 53