So, as I say, I carried on, it would be a case of once you get through your chemotherapy and your whatever else, you’ll be on tamoxifen, was the chosen drug. I know there’s all new ones on the market, but I was given tamoxifen, which didn’t do me very well. It blew me up, it just… I got all the, you know, the menopausal symptoms. Men aren’t supposed to have menopause but I had the night sweats where something… we were going through the night sweats together, so the bed was wet through. And we had the night sweats and the hot flushes and whatever else, and I was just getting bigger and carrying a lot of weight and fluid. My ankles were swelling up and I just said to my nurses and doctor, I said, “Do I have to have this?” And they went, “Well, you do, really, you’re supposed to be on it five years”, and I said, “This is doing me no good at all. Ain’t there anything I can change?” This… herceptin and all that lot were just coming on the market at that time and it were, “Well, no, this is the best thing for you, we’ve looked at it”. I said, “Well, what is it doing to me, you know? What is tamoxifen doing?” I said, “Cos I feel horrible”. And… well, it’s just the same as it is for… but for a woman it causes, you know, problems below, womb cancers and cervical cancer and whatever else. I said, “But what is it doing to a man? I ain’t got them bits.” And they went, “Well, you know…”, you do feel it affects other things as well as, you know, but we had a long discussion with the nurses and the doctors and it was a case of, “If you can get to two years with the tamoxifen, we’ll review it.”
So we carried on then, tamoxifen every day. Used to take it on an evening so you could more or less sleep off any symptoms, but oh, it just blew this thing, I mean, this is still blowing up and, you know, I used to be a 32 waist for years, but then I could get up in the morning and I’d be like a 36 waist, but by the end of the day I could be 38, 40.
It had just filled up with air and I’m just carrying all this lot around. It was horrible, and clothes-wise it was, you know, different pairs of trousers for different types of day. Really, really strange. Put it down to tamoxifen. It might not have been, but it didn’t happen before. Anyway, we got to two years with the tamoxifen and I just said, “Look, I am really struggling with this thing now, can we review it?” And they just went, “Yeah, we’ll have a look at it.” The next time I went to the clinic, it was stopped.
“Well, what do I need to take?” “Well… nothing. You don’t need to take anything. We have… looked into it and between me and you” - I don’t know if you want this on, but they just said that - “Between me and you, there’s no difference from taking tamoxifen for two years as there is for taking it for five years”. So are people taking tamoxifen for nothing, really, you know? I know a lot of people I’ve met through my journey is that they think it’s keeping them alive, but is it? I don’t know. I ain’t been on any drugs for two years, three years now, so… I’ve done alright.