Do you get feedback from the team about how the research is going and how, what results they’re getting?
I do, yes, and very good feedback. In fact, we’ve had some very strong feedback from some of the tests that have been going on, particularly around some of the investigation in how the brain works. And I know there’s been a big breakthrough, as far as the research is going, in finding out more about how the right and the left side of the brain communicate. And that’s all come back to, you know, we’ve been told about it. I mean, silly little thing like being sent photographs of my own brain, “Would you like to see what it looks like? And, by the way, you were one of twenty-five people that came, helped us with this data, that’s now led us to be able to put an article together and put it forward. And again, by doing that it gives us more of a chance with the medical research funding us with further things going forward.” Now all that things, all those things have been explained to us, websites to have a look at and see where this research is being discussed. I don’t necessarily spend all day going through those websites and having a look at, and finding out for myself. I do occasionally out of curiosity. But just with the very knowledge that we’re being told that it’s useful, and it’s leading to better things. Last time I went for the MRI there were two extra scans that were done – “You will you be in the in the scanner a bit longer than you were last time because we want to perform two extra things.” So, you know, just having that knowledge is very good.
And that’s feedback that they give you unsolicited rather than you having to ask?
I don’t have to ask for it. And whenever they give us this feedback they even ask us if we want more information. You know, “Feel free to” - and normally after every visit I get a thank you letter, and a bit of very, very brief paragraph on what’s going to happen in the future, and “Are you happy to come back again, say, in six months time?” or whatever. So no, I’ve got no issues whatsoever with them. They’ve been great with communicating what they’re doing and how it’s going.