Frosty – Interview 13

Frosty found a lump on his penis. He sought help from his GP and received several referrals before being diagnosed with penile cancer in August 2007. He had surgery to remove the cancerous part of his penis and further surgery to remove lymph nodes from his groin.

Frosty first detected a rash which turned into a lump on his penis two weeks before he visited his GP. He hoped it would disappear but decided to seek help when it didn’t as he has a family history of cancer. He was referred to his local hospital where he eventually saw the consultant urologist. He diagnosed penile cancer and referred Frosty on to a Specialist Penile Cancer Centre. Having lost his mother only a couple of months previously Frosty had to break the news to his family, who were all very supportive.

Frosty’s first operation involved him having the cancerous part of his penis removed and reconstructive surgery. He had no pain, but had soreness on his leg where the skin had been removed for the reconstruction. The surgeon was able to save more of the penis than he had planned but, it was still a shock to Frosty when he first caught site of himself. After a few days he was discharged home under the care of a district nurse. Returning for a post-operative check two weeks later Frosty was told he would need another operation to remove a suspicious lymph node. This was a little more painful but he was allowed home after five days. During this time he received support from the Macmillan nurses.

At his next post-operative check Frosty was given the bad news that more surgery was needed on his lymph nodes. After this operation he decided to take his wife on holiday, against the surgeon’s wishes, but everything went to plan and they both returned feeling revitalised.

After having his urinary catheter removed Frosty had problems with urinary retention, which meant yet another trip to the operating theatre! This thankfully was his final surgery and from there his condition began to improve. For the next two years he had to visit the hospital for check-ups every three months, then it was every six months. Half way through the fourth year post-op Frosty was given the all clear’.

Frosty has remained positive throughout this experience. He cannot praise his care or his carers highly enough. His family and friends were, and still are a strong source of support. A keen golfer, several of his golfing companions have had personal experience of various types of cancers and together they have formed an informal support group, swapping stories and giving each other encouragement. Frosty also feels he has widened his horizons, visiting friends, eating foods that are new to him, going out every day with his wife and organising family gatherings.

With his cancer removed and his urinary problems solved, Frosty leads a full, active life and is looking forward to a bright future.

Frosty and his wife find sex a little more difficult now but he feels that sex is less important…

Age at interview 68

Gender Male

Age at diagnosis 65

Frosty believes people who are positive recover quicker.

Age at interview 68

Gender Male

Age at diagnosis 65

Frostys cup was always half full and when on the ward he had a laugh with other patients.

Age at interview 68

Gender Male

Age at diagnosis 65

Whilst it was a bit of a shock to see, Frosty was more impressed by the results of his surgery…

Age at interview 68

Gender Male

Age at diagnosis 65

Frosty feels that his aftercare has been excellent. A district nurse came to change his dressings…

Age at interview 68

Gender Male

Age at diagnosis 65

In the appointments following his treatment, Frosty was physically checked and had several scans…

Age at interview 68

Gender Male

Age at diagnosis 65

Frosty had preoperative tests on his heart and lungs a week before the operation and further MRI…

Age at interview 68

Gender Male

Age at diagnosis 65

After having his catheter removed, Frosty had problems emptying his bladder and with leaking: he…

Age at interview 68

Gender Male

Age at diagnosis 65

Frosty wasn’t as downbeat as he thought he would be when he received his diagnosis: he had the support of his family.

Age at interview 68

Gender Male

Age at diagnosis 65

Frosty told his wife nothing of his concerns before diagnosis so as not to worry her…

Age at interview 68

Gender Male

Age at diagnosis 65

Frosty appreciated the camaraderie on his hospital ward and talks about comforting another…

Age at interview 68

Gender Male

Age at diagnosis 65

After his partial penectomy, Frosty had an operation to remove some lymph nodes from his groin…

Age at interview 68

Gender Male

Age at diagnosis 65

Frosty found it a bit strange having health professionals examine his penis, but he got used to…

Age at interview 68

Gender Male

Age at diagnosis 65