Andrew - Interview 25
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In 1990, Andrew’s son noticed a tremor in his right hand. After seeing a consultant at the local hospital on several occasions, he was diagnosed with Parkinson’s Disease.
Over the years, the tremor became very severe and Andrew was also having panic attacks and couldn’t concentrate on anything. So he was put forward for deep brain stimulation. After the operation, his tremor completely stopped. He feels it was worth going through the operation and he thoroughly recommends it.
About a year after Andrew had deep brain stimulation, the left side of his body started to tremor. So he had a second deep brain stimulation operation. Again that was very successful, although he now has hallucinations.
Several years after his operations, Andrew was having difficulty walking and talking so he was prescribed Cabergoline which he’s been taking for seven years. Cabergoline has greatly helped his symptoms. Now he can walk short distances. He uses his buggy for longer distances. He feels stiff at times and has difficulty getting out of chairs. He has some episodes of freezing and has had several falls. But there are now no longer any fluctuations in his symptoms like there had been before and if he forgets to take his medication on time, he doesn’t notice a significant difference.
He also takes Selegine and Madopar and experiences some side effects, such as a dry mouth.
Andrew wears a badge which says “I have Parkinson’s Disease.” He thinks it is important not to hide the fact that he has Parkinson’s Disease. He advises others to join their local Parkinson’s disease group where they can get a lot of information to help them.
Andrew had two DBS operations in the 1990's and remembers hearing the doctors talking about what...
Andrew discovered the importance of his pulse generator when the wrong setting was accidentally...
The box controls amptitude, voltage, polarity. It’s about ten different things it does and I’ve got a good working relationship with the technician and he, if I feel that it’s a wee bit out, I’m getting a wee bit of tremor. I say, “ Can I come across.” “Okay.” I go across, he comes out, “Oh, hello how are you doing?” Two minutes, readjust and be away again. No appointment, just. It’s worked very well. I’ve kept it under control.
Andrew has had many hallucinations in which he sees his late wife.