Luke – Interview 15

Luke was diagnosed with hairy cell leukaemia after feeling very tired. A six week course of intravenous pentostatin as an outpatient put him into remission. Five years on he still gets tired and has other health problems.

After recovering from surgery to treat peripheral vascular disease in his legs he started feeling very tired. His GP did some blood tests, repeated them and referred him to a consultant, saying he had a kind of leukaemia. At the hospital the consultant told him it was a rare but eminently treatable type of leukaemia called hairy cell’.

He was treated with a chemotherapy drug called pentostatin. He was given the drug intravenously once a week for six weeks, which gave him no side effects and put him into remission. Following treatment he developed a condition called polycythaemia in which the red blood cells are too numerous and had to have some removed.

He continues to see his consultant every year for blood tests. He still gets periods of intense tiredness but the tests show his leukaemia has not returned. Since his leukaemia he has experienced other health problems including a type of skin cancer called melanoma.

Lukes hairy cell leukaemia was treated with a chemotherapy drug called pentostatin; he had no…

Age at interview 64

Gender Male

Age at diagnosis 59

After achieving remission from his hairy cell leukaemia Luke developed polycythaemia, an excess…

Age at interview 64

Gender Male

Age at diagnosis 59

Luke’s hairy cell leukaemia needed only 6 infusions of chemotherapy over 6 weeks – he was…

Age at interview 64

Gender Male

Age at diagnosis 59

Before being diagnosed with hairy cell leukaemia Luke felt too tired to do all his usual post…

Age at interview 64

Gender Male

Age at diagnosis 59

Although Luke had been interested to read about other peoples experiences of leukaemia he wouldn…

Age at interview 64

Gender Male

Age at diagnosis 59