Would you have a message to anybody about your experiences, who might have found out they’ve got Factor XI deficiency.
Well I would just tell them to be aware, and it’s a good idea to, well they would only be aware that they had that deficiency if they had been to haematology. They would have found out through blood checks. But always if you’re having any surgery or any procedures done, always tell the surgeon that you have this problem. I know that there are certain little procedures that could be done, and when they hear about it, sometimes the surgeons are scared to go ahead with something, because they think, oh she’s going to bleed, it’s going to affect the... I might get sued or something like that, so it doesn’t happen that way, it there’s always a remedy, a very easy remedy now.
And I know my son said, “Having fresh frozen plasma injected into you”, he said, “It’s like having a transplant,” [laughs]. You know, your blood is going into your veins and everything. But if you have a blood transfusion and you bleed it’s the same thing, that’s going into your veins, just the same. So there’s no danger with it really. It’s just the case, it’s a nuisance. But you have to be aware and to tell whoever you’re going to visit that this is going to happen.
I think, also I was told that even if you have a dental extraction, or some gum surgery, or something like that, you should always tell the dentist to be aware, just in case. It’s very rarely anything happens with small type of procedures like that, but you have to be aware, just in case.