John

John’s partner (Lisa – Interview 03) had a high-risk pregnancy. After a long labour, their baby daughter was born safely, but Lisa then haemorrhaged. Doctors were unable to stop the bleeding and had to perform an emergency hysterectomy to save her life.

John’s partner, Lisa’s life threatening event took place 13 months before her interview, during the swine flu epidemic of 2009. Their daughter survived and is well. Lisa had high-risk pregnancy due to a condition called osteogenisis imperfect (a condition causing extremely fragile bones.) and symphysis pubis dysfunction (SPD) which causes excessive movement of the pubic symphysis causing inflammation and pain, which left her wheelchair-bound for last few weeks of her pregnancy. She developed cholestastis (build up of bile in the blood stream) and was asked to go in to hospital to be induced at 39 weeks. She arrived on a Thursday night, her labour did not progress for 3 days. When her labour did finally start, she was exhausted, in extreme pain (with no pain relief) and felt as though she had been ignored by staff for days. She asked several times both before the birth and during labour for a caesarean section, but was refused. She was finally put in stirrups and forceps were used to deliver her daughter, despite these being written on her notes as not advisable.

Lisa was given her baby, who started breastfeeding immediately, but she soon started haemmorhaging. Lisa was rushed off to theatre and went on to haemorrhage three times. John was left in the delivery suite wondering what was happening to her. Lisa woke up in intensive care (ITU) three days later. Lisa felt the care on the maternity ward was not good, and after about a week she discharged herself in the middle of the night. Lisa was wheelchair bound for a long while, did not go out of the house much and could only walk for 15 minutes at a time. John had to do a lot of the childcare until she was stronger. Her GP had been very supportive and they were both offered counseling.

John was left alone in the delivery suite after his partner was rushed off to surgery to stop her…

Age at interview 41

Gender Male

Age at diagnosis 40