Here, you can find any of the interviews on this site.
When Jhon was born his parents took part in a lung and asthma study that has involved annual questionnaires. Jhon recently took part in the second stage of this long term study at his school which was an allergy survey.
Jhon, aged 13 is White British, lives with his parents and attends Secondary School. He enjoys ‘making a difference’, swimming, reading and being with friends. Jhon was diagnosed with Osteogenesis...
Sophie was invited to take part in a clinical trial by her doctor. The trial was to assess glycemic control in cystic fibrosis. It was a short trial that involved monitoring her blood sugar levels. Sophie is very supportive of clinical trials in general.
Sophie is 23 years of age, lives with her parents and describes herself as White British. Sophie was diagnosed with cystic fibrosis at the age of eight years. Sophie works...
Robert has always taken part in clinical trials where possible. These have ranged from simple one-off collection of breath samples to having a dose of gene therapy, having a bronchoscopy either side of the dosing and the visits to the hospital.
Robert, aged 22, was diagnosed with cystic fibrosis soon after birth. He recently graduated from the University of Oxford in Mathematics and Statistics and would like a career in Medical...
Saskia was asked to take part in a clinical trial that involved the completion of a questionnaire at each routine clinic visit. Saskia wanted to take part to help other people with diabetes.
Saskia is aged 13, goes to school and lives with her parents. Saskia was diagnosed with diabetes at the age of 11 years.
Before taking part, Danny had to sign an assent form to say he agreed to take part in the trial. He was happy to take part and found it a good experience and learned more about his diabetes and how it affected him.
Danny, aged 13, lives with his parents and sister and attends a local school. Danny was diagnosed with diabetes at the age of four and recently took part in a...
Hannah was invited to take part in a randomised clinical trial when attending the diabetes clinic for a routine appointment. After everything had been explained and reading the information she was given Hannah agreed to take part.
Hannah is 17 years of age, is White British, goes to a local high school, and lives at home with her parents. Hannah was diagnosed with diabetes at the age...
Sophie took part in a randomised controlled trial to assess the value of an intervention for use by diabetes clinicians to help young people self-manage their diabetes and other long term health conditions. Sophie enjoyed taking part in the trial and would consider other similar trials in the future.
Sophie aged 12 is White British and lives at home with her parents and siblings. She attends a local school and enjoys Art and cleaning her bedroom. Sophie was diagnosed...
Joe was invited to take part in a randomised controlled trial soon after he was diagnosed with diabetes, one year ago. The aim of the trial was to assess hospital versus home management at diagnosis in childhood diabetes. Joe was happy to take part.
Joe aged 15 is White British and lives at home with his parents and siblings. Joe attends a local school and enjoys football and going out with friends. He was...
Wegener's granulomatosis is rare among young people and can affect many organs in the body, it can also be life threatening. Stephanie was invited to take part in a trial on improving the treatment of Wegener's granulomatosis and after discussing it with her mum, she agreed to take part.
Stephanie aged 18, of mixed ethnic origin; Greek-English, is a student, and lives with her parents and sibling at home. At the age of 15 Stephanie was diagnosed with Wegener’s...
Although the doctors and nurses talked to Ethan about the trial, he doesn't remember too much about it. He says it was all a bit too much to take in at the time and he just wanted to get better.
Ethan is aged 12, lives with his parents and his sister at home. He attends a local school and enjoys going to ju jitsu. Ethan was diagnosed with a brain...
