Here, you can find any of the interviews on this site.
Ruby has to take steroids as part of the treatment for lupus. However, the steroids cause a thinning of the bones and the trial is to see which medicine is best that prevents this from happening. Ruby does not know which medicine she is taking.
Ruby aged 17, is Chinese, lives with her parents, and goes to a local high school. Ruby was diagnosed with lupus at the age of 16 and soon after was...
Fflur was diagnosed with overlap connective tissue disease with features of arthritis, scleroderma and dermatomyositis at the age of 11 years. She recently took part in a study to find the best way of taking blood samples.
Fflur aged 12, is Welsh, and lives with her parents, brothers and sisters. She attends a local school and loves to do crafts in her spare time.
Toby was diagnosed with migraines at the age of 6 years. He recently took part in a randomised placebo controlled drug trial. Toby has completed the trial and found out that he was taking the placebo and not the drug.
Toby aged 11, is White British, lives with his mum and attends a local primary school. Toby’s after school activities include boxing, cycling, football and tennis.
Alisha is taking part in a Cohort Study on children and young people with arthritis that involves completing a self-administered questionnaire at her regular clinic appointments.
Alisha is 13 years of age, White British, lives at home with her parents and siblings and attends a local school. Alisha was diagnosed with arthritis at the age of...
Lois was invited to take part in a double-blind randomised controlled trial soon after diagnosis. She is pleased to be taking part to help others and enjoys some of the tests. She says everyone at the hospital have been really friendly and helpful.
Lois is 14 years of age, White British and lives at home with her parents and siblings. She attends at local school and was diagnosed with an overactive thyroid (Grave’s...
Joanna was admitted to hospital because of stomach pains and aches. She was diagnosed with vasculitis and soon after diagnosis was invited to take part in a randomised placebo controlled trial to which she agreed.
Joanna is 17 years of age, White British and lives with her parents. She is currently at college studying musical theatre. Joanna was diagnosed with vasculitis when she was16.
Katie is taking part in a randomised placebo controlled drug trial. She was keen to take part, and feels special as there are only a few young people taking part in the UK. However, due to her health Katie has had to stop the trial for a short while.
Katie is 13 years of age, is White British, attends a local school and lives with her parents and sister at home. Katie was diagnosed with cystic fibrosis when she...
Soon after diagnosis Alexander was invited to take part in a clinical trial by the consultant at the hospital. The trial is a randomised placebo controlled drugs trial and is double blind. Alexander is hoping that by taking part his health will improve.
Alexander aged 18, is White British and lives with his mum. He was diagnosed with systemic juvenile polyarthritis at the age of 16. Because of poor health and taking part...
Soon after diagnosis Mohini's parents were asked if they would be willing to enter Mohini in a clinical trial. Her parents talked to Mohini about the trial and they discussed it over a few weeks before making a decision. Mohini decided that she did not want to take part in the trial and so she declined.
Mohini aged 12, is Asian Indian, and attends a local school. Her hobbies include dance and volunteering. She is a member of the Medicines for Children’s Research Network. Mohini was...
Kerenza is taking part in a research study following young people with arthritis. She has to complete questionnaires about how she feels and how she is coping with any pain.
Kerenza is 15 years of age, White British, attends a local school and lives with her parents and sister. Kerenza enjoys dancing. She was diagnosed with chronic juvenile idiopathic arthritis...
