Charmaine – Interview 19

Charmaine consented for her youngest child, Courtney to receive Growth Hormone Treatment as part of a clinical trial. This was not an easy decision at the time, although now she is pleased she did. After five years Courtney has withdrawn from the trial.

Charmaine, aged 36 years married with two children ages 12 and 15 years. Charmaine works part time as a Maternity Support Worker. Her youngest child took part in a clinical trial involving Growth Hormone Treatment.

Charmaine explains that it took over one year to decide whether to consent for her daughter to take part in the trial and receive Growth Hormone Treatment. After seeking information about growth hormone treatment from the internet and talking to friends, family, reading the information about the trial and talking to members of the clinical and research teams, she eventually, with her husband, agreed for Courtney to take part.

When asked why it had taken so long to make the decision, and what finally reassured her to enroll her daughter, Charmaine explains that initially she had some concerns about possible longer term side effects including abnormalities of the bone. Finally after much thought and research she says When they reached 16 or 17, when they want to drive and they’re only like four foot and they wouldn’t be able to reach the pedals do you see? You know. And your daughter or your son is going to turn round and say Mum why didn’t you put me on the growth hormoneā€ So, her daughter’s future was a primary motivation to take part. Courtney remained in the clinical trial for five years. This involved receiving daily injections using an injection pen.

Charmaine is pleased that her daughter took part. Her daughter, although still small, has caught up with her peers in terms of growth. She says that it really was easy to do and didn’t interfere with family holidays or other social events. They were always reimbursed for any travel to and from the hospital for appointments. However, she goes on to say how Courtney disliked having the injections. Eventually, after five years, Courtney requested to stop having the injections. Charmaine and her husband respect Courtney’s decision and thus have withdrawn from the trial.

Charmaine took the injection kit on outings and family holidays, but sometimes having daily…

Age at interview 36

Gender Female

It was their daughters decision to withdraw from a growth hormone trial.

Age at interview 36

Gender Female

It can be distressing to watch a child experience the consequences of their condition, and this…

Age at interview 36

Gender Female

Charmaines daughter took part in a growth hormone trial for five years. It involved an overnight…

Age at interview 36

Gender Female

It was helpful to have the nurses visit the home to demonstrate the injections, although her…

Age at interview 36

Gender Female