So I was referred to the local hospital to see the speech therapist and the occupational therapist. The speech therapist and the rehabilitation consultant were talking about me having a PEG because of my weight loss. I felt very strongly that I didn’t want a PEG at this time, and fortunately my MND consultant agreed with me. I think I’ve been proven right, because three years later I’ve still not lost any more weight. So that was a good thing. And again the speech therapist, I can contact her when and if I need help.

Is there any way the doctors or any of the nurses communicated to you, have there been any good examples or any not so good examples?

I suppose good examples are people saying, you know, We’re here to help you in the way that you nee. I’ve appreciated that more than the example of, Well, you’re a very thin person. Therefore I think you need a PE. And that was really quite frightening. Because although yes I am a very thin person and that is one of the troubles with MND, I’ve only lost about a stone from my original weight, and I was a pretty thin person beforehand. So, yes, Let’s, let’s work together about finding what solutions you nee as opposed to, This is what I think you nee. That works better for me. Whether it would work as well for everybody, I don’t know. But it certainly works better for me that way, yes.