Life on the Autism Spectrum
Autism & housing
Some people we talked with lived in residential homes or at home with their parents. Some live in independent supported living with paid carers, while others lead independent lives, either in a relationship, with their family, or on their own.
Richard lives with 'a lot of folk with less functioning autism' in a supported house.
“I don’t want to leave yet, I’m happy as I am”
Several people lived with their parents and did not anticipate moving out for some while. A few were hoping to move out soon, but worried a bit about how they would manage.
Miranda 'dreads the thought' of moving from the family home she has always lived in.
Simon is happy with his parents and talks about the potential problems with moving, such as...
Russell recalls some of his experiences of living away from home and the support he would like in...
Mary is very keen to move out from her parent's home, but does not want to live in a residential...
“I’m not very good with people, so it’s infinitely easier to live on my own”
A few people were happy living on their own sometimes with some support either from support workers, or family members.
Alex has lived on her own for six months now, having had a full time carer living with her for around 18 months. She is renting a house from the local housing association and has had the house adapted with safety features in the kitchen and bathroom.
Alex's new carers didn't notice that she hadn't eaten for 13 days when she first lived on her own.
It started off really badly. I just transitioned from the learning disability team to the mental health team, because apparently if you haven’t got an IQ below 70 then the learning disability team can’t finance your stuff. So the only way I could get funding was to go into the mental health team, and that happened in September. I began living on my own in October. And, and I didn’t eat for thirteen days because there was no one around to cook for me, and although the mental health team were sending people in to check on me two or three times a day, no one bothered to ask if I’d eaten. So, it was 13 days before somebody realised that I hadn’t actually eaten, by which point I was actually getting pretty unwell.
So I actually went from like October to March. I think between October and March I ate 13 cooked meals. We worked it out and it was all, the only time I eat those was when I was with my day centre. Going out and doing stuff so that was pretty awful. There was things like sorting out medication because my carer would always go and collect my prescriptions. And things like that. And everybody kind of like forgot that I took regular medication. I managed to sort that out myself by using an online pharmacy by Lloyds but again I did end up going like a couple of weeks without any medication, which when you’ve got epilepsy isn’t really very good.
John's landlord can cope with the impact his irritability has had on his home.
Sam used to hide in his room from housemates and would only consider living with postgraduates in...
If I’ve got a friend I’ve got a lot of enthusiasm for them, and I like to spend time with them, and everyone else I’m just really, whatever. So I just usually if I actually talk to anybody in the house I always talk to one person and everyone answers just purely getting away quite simply. I don’t know I’m not very good with people. So it’s infinitely easier living on my own. Not having to hide in my room while getting hungrier and hungrier as they’re in the kitchen, no one shouting or slamming doors or whatever, at whatever time in the morning. I wouldn’t mind… I possibly… if I did live with anyone else again it would be with postgraduates I think, when I’m at university. Because they are usually much more mature and intelligent and interesting and they them to sleep before say 2 in the morning which is much more convenient for me. And they don’t shout so much. They’re not usually racist either
Last reviewed July 2016.
Last updated July 2016.