Having some understanding of how my life is affected

– I am asked how my problem affects my work, my hobbies, and so on.
– Health professionals think about my family and not just me.

Zoe prefers to talk to her nurse because she gives helpful advice and listens to her.

Age at interview 32

Gender Female

Age at diagnosis 20

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He moved to a different HIV clinic and found the care there better. (Read by an actor.)

Age at interview 63

Gender Male

Age at diagnosis 51

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Joyce had a very positive experience when she saw her GP about HRT

Age at interview 48

Gender Female

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Pearl thinks that the issue of sex after being diagnosed with RA can affect relationships and…

Age at interview 60

Gender Female

Age at diagnosis 40

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Tina feels she is well understood by her GP and diabetes nurse and that they listen to her ideas.

Age at interview 45

Gender Female

Age at diagnosis 33

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Bex says it’s confusing to see different doctors and nurses at every appointment, especially when…

Age at interview 20

Gender Female

Age at diagnosis 13

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Rivas consultant has been supportive, helpful and willing to try things.

Age at interview 34

Gender Female

Age at diagnosis 16

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Kirsty wants to know more about her epilepsy but feels uncomfortable asking questions when she…

Age at interview 20

Gender Female

Age at diagnosis 19

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Marcia felt more comfortable seeing a female GP

Age at interview 46

Gender Female

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Sue had a meeting with the consultant six weeks after her sons death and two years later. She…

Age at interview 51

Gender Female

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She wants honest information, but it’s good to be given some hope and encouragement, not just…

Age at interview 66

Gender Female

Age at diagnosis 65

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Carole found her GP very helpful. She preferred asking about sex and contraception herself rather…

Age at interview 20

Gender Female

Age at diagnosis 18

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The breast care nurse helped to explain things to the children.

Age at interview 50

Gender Female

Age at diagnosis 42

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Alice wanted to know why she had a heart attack and what she can and can’t do in the future

Age at interview 49

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The care Franks wife Jen received was fantastic in the local and city hospital. There was always…

Age at interview 62

Gender Male

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The cardiac care team gave her plenty of useful information.

Age at interview 57

Gender Female

Age at diagnosis 53

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The cardiac nurses were very good at explaining procedures and giving information.

Age at interview 61

Gender Male

Age at diagnosis 49

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Samantha and her husband appreciated meeting with paediatricians who explained what would happen…

Age at interview 32

Gender Female

Age at diagnosis 31

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Alex found it hard being in hospital for weeks, separated from her two year old daughter. But…

Age at interview 37

Gender Male

Age at diagnosis 36

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She finds Incapacity Benefit invaluable and wishes she had known about it earlier.

Age at interview 53

Gender Female

Age at diagnosis 30

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Patients may forget what they have been told so it helps to have the phone number of a nurse to…

Age at interview 63

Gender Female

Age at diagnosis 36

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He is very pleased with the coordinated service provided by his nearest specialist MND centre. He…

Age at interview 57

Gender Male

Age at diagnosis 50

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