Sarah

Age at interview: 23
Brief Outline: Sarah has had eczema all her life. Her skin cleared up during her teenage years but the eczema returned whilst she was at university. She has seen many GPs and finds it frustrating that she tends to be offered only a limited number of treatment options.
Background: Sarah is 23 years old and a charity/youth worker. Her ethnic background is White British.
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Sarah has had eczema since she was born, continuing through to her childhood to her early teens when it cleared up almost entirely. However, when Sarah moved away to university, her eczema returned severely. She had eczema on her face for first time; the skin was very red, flaky and she had swelling around her eyes. She did not have the right medications for her skin and she was not yet registered with a GP in her university city when this big flare-up happened. She thinks her eczema came back because of all the changes that were happening, including moving to a new place (with a different water type and low quality university accommodation) and increased alcohol consumption. The GP she saw prescribed an emollient and steroid cream which started to help almost instantly. She continues to manage her eczema with moisturisers and occasionally steroids. Sarah’s eczema has become infected before, including developing sebaceous cysts and impetigo which required several courses of antibiotics.
Sarah has had mixed experiences with GPs, including receiving contradictory advice on using steroids on the face. She has asked for a dermatology referral but was told that she must first try all the treatment options. This is frustrating because the GPs she has seen tend to offer only a couple of moisturisers, for example. However, when Sarah asks for a particular moisturiser by name, she finds that GPs are usually willing to prescribe it. Sarah now tries to limit her use of steroids out of concern that these might become less effective and cause long-term damage to her skin. She once stopped using steroids altogether but this became very difficult at such a stressful time during the exam period. She has looked on some forums about steroid withdrawal and likes to read beauty blogs about products suitable for people with eczema. The cost of treatments for eczema was a big concern when Sarah had an unreliable income with a part-time job. She finds it frustrating that both prescribed medications and shop-bought products often do not offer samples, making the process of trialing different things for her skin very expensive.
Sarah has found it very hard having eczema on the face, such as on the eyelids, around her chin, behind her ear, on the back of her neck. She has combination skin which makes it difficult to manage eczema alongside acne breakouts. She finds that thick moisturisers can cause blocked pores, leading to spots on her face and ingrown hairs on her legs. Sarah has tried lots of different cosmetic and hair styling products, eliminating those which aggravate her skin; this includes products which aren’t directly applied to the skin but disperse, like hairspray, shampoo and spray deodorant. Sarah would like to have an allergy test to help her avoid triggers but her GPs have not been supportive about this. Sarah knows of some triggers already for her eczema, including stress, a lack of sleep, dehydration, sports, tight clothes, biological washing powder, fabric conditioner, season changes, dust and animal fur. Some alcohol and sugary drinks, such as cider, also make her skin worse but she’s not sure about other food triggers for her eczema. Eczema also limits the clothes that Sarah can wear, making it difficult to dress smartly when she wants to. She tries to limit the amount of make-up she wears – she worried that it would make her feel self-conscious but she has instead found it “liberating”.
Sarah’s advice is to young people is to talk to others about their eczema, as she says that this will help them feel more comfortable. Many of her friends also have eczema and she finds that talking with them helps her “see the funny side” of the condition that people without eczema wouldn’t really know about. Sarah would also like for doctors to offer more of a range of treatments, for example different kinds of moisturisers, and to recognise how committed many of their patients are to managing their eczema well.
Sarah has had mixed experiences with GPs, including receiving contradictory advice on using steroids on the face. She has asked for a dermatology referral but was told that she must first try all the treatment options. This is frustrating because the GPs she has seen tend to offer only a couple of moisturisers, for example. However, when Sarah asks for a particular moisturiser by name, she finds that GPs are usually willing to prescribe it. Sarah now tries to limit her use of steroids out of concern that these might become less effective and cause long-term damage to her skin. She once stopped using steroids altogether but this became very difficult at such a stressful time during the exam period. She has looked on some forums about steroid withdrawal and likes to read beauty blogs about products suitable for people with eczema. The cost of treatments for eczema was a big concern when Sarah had an unreliable income with a part-time job. She finds it frustrating that both prescribed medications and shop-bought products often do not offer samples, making the process of trialing different things for her skin very expensive.
Sarah has found it very hard having eczema on the face, such as on the eyelids, around her chin, behind her ear, on the back of her neck. She has combination skin which makes it difficult to manage eczema alongside acne breakouts. She finds that thick moisturisers can cause blocked pores, leading to spots on her face and ingrown hairs on her legs. Sarah has tried lots of different cosmetic and hair styling products, eliminating those which aggravate her skin; this includes products which aren’t directly applied to the skin but disperse, like hairspray, shampoo and spray deodorant. Sarah would like to have an allergy test to help her avoid triggers but her GPs have not been supportive about this. Sarah knows of some triggers already for her eczema, including stress, a lack of sleep, dehydration, sports, tight clothes, biological washing powder, fabric conditioner, season changes, dust and animal fur. Some alcohol and sugary drinks, such as cider, also make her skin worse but she’s not sure about other food triggers for her eczema. Eczema also limits the clothes that Sarah can wear, making it difficult to dress smartly when she wants to. She tries to limit the amount of make-up she wears – she worried that it would make her feel self-conscious but she has instead found it “liberating”.
Sarah’s advice is to young people is to talk to others about their eczema, as she says that this will help them feel more comfortable. Many of her friends also have eczema and she finds that talking with them helps her “see the funny side” of the condition that people without eczema wouldn’t really know about. Sarah would also like for doctors to offer more of a range of treatments, for example different kinds of moisturisers, and to recognise how committed many of their patients are to managing their eczema well.
Sarah’s eczema cleared up during secondary school but suddenly returned at university.
Sarah’s eczema cleared up during secondary school but suddenly returned at university.
It was like unusually really bad on my face. So I got very, very flaky and very red, like quite swollen round my eyes which I still get now. And then it was just like on my hands and my, yeah, my elbows and stuff. And it was really bad. And then because I hadn’t had it for ages, I didn’t have the right medication for it and I hadn’t like got a GP or anything. So then I had to kind of find the GP and get all the medication I needed and then start managing it.
But I think it was because of like the change of environment and then also the quality of accommodation at the university halls which has like a really big impact. And the quality of the water. That’s what I think was why it suddenly became worse. And alcohol consumption [laughs]. Which - yeah.
Could you say a bit more about those factors? About the sort of --
Yeah.
-- environment and different things you were doing at university?
Yeah, so I was definitely, when I was at uni I was probably drinking more than I’d been drinking at home. I was using like different water. So I moved to a different part of the country where the water quality was different and I think that had a big effect on, like on my skin. And then, I can’t think, like because I hadn’t had it for a while I think I was doing things I wouldn’t have done if I’d known I was gonna get eczema. So like using wrong detergents on my clothes, using like wrong fabrics to wear and all things like that.
Sarah explains why she finds the face, especially around her eyes, to be the worst body location for having eczema.
Sarah explains why she finds the face, especially around her eyes, to be the worst body location for having eczema.
Why do you think that is?
I think because like your eyes are so communicative with other people, that’s what you think people are looking at all the time. So when your eyes feel puffy, like you can’t even open them properly. And they, when you, ever you look in the mirror, you look into your own eyes and they’re like, wow, red and scaly and you look like a dinosaur. You’re like ‘oh, this is so embarrassing.’ And then you don’t want anyone else to like look at you and think you look like a puffy dinosaur. And also like, sorry. Like other things-. I think the thing about eczema, like with acne, when people see acne they kind of know what it is, they know what acne is. But when you’ve got like really red, puffy eyes, people don’t associate that with eczema. They don’t really know what it is. And they, I think it’s, kind of looks a bit strange. People don’t know why you look like that. So it, it’s a bit more, I find that makes it a bit more embarrassing. And then with spots, like you can always cover it up with make-up. Like even though it does make acne worse as well, but it’s a lot more common to be able to cover it up. But like with eczema, it’s really difficult to cover it up with make-up. It’s really hard. But then I’m sure like if I had acne I’d be saying the opposite things [laughs]. It’s very s-, like they’re two ends of the spectrum, but they’re probably like really similar in the experience of people who have them.
Sarah tries to only introduce one new make-up/cosmetic product at a time into her routine so she can work out whether it causes a reaction.
Sarah tries to only introduce one new make-up/cosmetic product at a time into her routine so she can work out whether it causes a reaction.
Sarah talks about cosmetic and bathing products which may be used on one part of the body but trigger eczema elsewhere.
Sarah talks about cosmetic and bathing products which may be used on one part of the body but trigger eczema elsewhere.
Sarah’s eczema returned whilst she was at university. Because she’d had it since she was a child, she found it unhelpful having GPs repeat what she already knew about eczema.
Sarah’s eczema returned whilst she was at university. Because she’d had it since she was a child, she found it unhelpful having GPs repeat what she already knew about eczema.
Sarah found that some eczema creams blocked her pores, making her more prone to spots and ingrown hairs.
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Sarah found that some eczema creams blocked her pores, making her more prone to spots and ingrown hairs.
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Sarah has had mixed advice about using steroid creams on her face.
Sarah has had mixed advice about using steroid creams on her face.
Sarah didn’t like some things about the antibiotics she had for her infected eczema, such as the smell/taste and that she couldn’t drink alcohol whilst taking them.
Sarah didn’t like some things about the antibiotics she had for her infected eczema, such as the smell/taste and that she couldn’t drink alcohol whilst taking them.
Talking to friends with eczema is an emotional and practical source of support for Sarah.
Talking to friends with eczema is an emotional and practical source of support for Sarah.
Sarah talks about the impact of school uniform on her eczema.
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Sarah talks about the impact of school uniform on her eczema.
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Sarah talks about eczema as an extra difficulty impacting on young people.
Sarah talks about eczema as an extra difficulty impacting on young people.
Sarah first heard about Protopic through a friend who’d seen a private dermatologist.
Sarah first heard about Protopic through a friend who’d seen a private dermatologist.
Sarah applied for free/reduced cost prescriptions (the NHS Low Income Scheme) whilst working part-time.
Sarah applied for free/reduced cost prescriptions (the NHS Low Income Scheme) whilst working part-time.
Sarah has lots of prescribed and shop-bought products she’s no longer able to use.
Sarah has lots of prescribed and shop-bought products she’s no longer able to use.
Sarah finds that looking smart for work can be difficult with eczema.
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Sarah finds that looking smart for work can be difficult with eczema.
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Not wearing make-up to work I sometimes feel like ‘oh, well, I look a bit tired and awful today. But it’s quite good. Like I’m not wearing make-up, so maybe the, that shows that like you don’t have to wear make-up all the time if you’re a girl’. I, I quite believe that. It’s something that, like one of my friends at uni never ever wore make-up. And I just thought like ‘I f-, I don’t even care like and nobody cares. And she’s so beautiful and nobody minds,’ like. And that kind of made me think ‘okay, maybe like we don’t have to wear make-up all the time if we don’t want to.’ And that’s something that I try to like do. And then you just feel really comfortable. And it takes much less time for you to get ready in the morning. So that’s quite good.
Sarah looks at beauty blogs online to find out about products to try.
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Sarah looks at beauty blogs online to find out about products to try.
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