Harriet

Age at interview: 21
Age at diagnosis: 12
Brief Outline: Harriet had acne from around the age of 12 to 18. She tried a number of topical creams prescribed by her GP before being referred to a dermatologist. Roaccutane (isotretinoin) cleared her acne though she finds that her skin is now more sensitive.
Background: Harriet is 21 and an undergraduate university student. She is single and lives in university accommodation. Her ethnic background is White British.
More about me...
Harriet had acne between the ages of 12 to 18, mostly affecting her face and occasionally her chest and back. She visited her GP after a painful lump developed in her neck which the GP thought might be linked to acne. She tried a number of different topical creams prescribed by her GP and was unaware at this time that seeing a dermatologist would be an option. When she was referred to a dermatologist at age 16/17, Harriet took a three month course of Roaccutane (isotretinoin) which cleared her skin significantly. However, once she had finished the course, her acne began to return and she took an additional course of Roaccutane (isotretinoin). Another factor which helped fully clear Harriet’s acne was a school expedition to a warm, dry climate.
In addition to trying medical creams, Harriet researched online for information to help control her acne. She tried different face washes and moisturisers, using the Internet to identify components in these products which might make a difference. She also tried a number of home remedies for acne and made lifestyle adjustments. This included frequently changed pillowcases and tying her hair up to keep it from touching the skin on her face. Harriet also took advice from family members such as her brothers, although information from different sources sometimes made it confusing. For example, she had read online that diet is not linked to acne but found in her own case that reducing her dairy intake helps. She described the process of identifying various factors which contributed to her acne and those which improved her skin as a kind of “detective work”.
Harriet described herself as having been quite shy and reserved at school, with her acne making her feel additionally self-conscious. Swimming was especially uncomfortable because the chlorine stung on her face but she did not feel able to ask the teacher to excuse her from P.E. classes. Harriet resumed playing sport at university but wishes she had continued at school as she thinks this would have boosted her confidence.
Harriet finds that her skin is more sensitive since finishing Roaccutane (istotretinoin) and she continues a skincare routine with soap-free face washes and fragrance-free moisturisers. She had been concerned about scarring but found that people she had meet at university did not notice it and they were often surprised to hear that she had previously had acne.
In addition to trying medical creams, Harriet researched online for information to help control her acne. She tried different face washes and moisturisers, using the Internet to identify components in these products which might make a difference. She also tried a number of home remedies for acne and made lifestyle adjustments. This included frequently changed pillowcases and tying her hair up to keep it from touching the skin on her face. Harriet also took advice from family members such as her brothers, although information from different sources sometimes made it confusing. For example, she had read online that diet is not linked to acne but found in her own case that reducing her dairy intake helps. She described the process of identifying various factors which contributed to her acne and those which improved her skin as a kind of “detective work”.
Harriet described herself as having been quite shy and reserved at school, with her acne making her feel additionally self-conscious. Swimming was especially uncomfortable because the chlorine stung on her face but she did not feel able to ask the teacher to excuse her from P.E. classes. Harriet resumed playing sport at university but wishes she had continued at school as she thinks this would have boosted her confidence.
Harriet finds that her skin is more sensitive since finishing Roaccutane (istotretinoin) and she continues a skincare routine with soap-free face washes and fragrance-free moisturisers. She had been concerned about scarring but found that people she had meet at university did not notice it and they were often surprised to hear that she had previously had acne.
Harriet’s acne wasn’t always painful, but it could be when she used topical creams.
Harriet’s acne wasn’t always painful, but it could be when she used topical creams.
I think it does. It’s so hard to convey though, isn’t it, unless you sort of know…?
It’s when it, with the burning you feel like it’s doing something useful, cos you, you can sort of feel it almost, you can almost imagine like the acne evaporating from your skin. You’re like “Yeah”, this, and then you look in the mirror and you expect to be, you know, completely, completely clean skinned. But it does, it definitely feels like it’s working when it burns.
Harriet felt more self-conscious about spots on her chest than on her face.
Harriet felt more self-conscious about spots on her chest than on her face.
And were there any differences that you felt about the sort of facial acne versus like the sporadic bits on your back and chest?
In a way I was I think more self-conscious when it was not on my face. So it’s kind of more socially acceptable to have acne on your face rather than anywhere on your body. So I wouldn’t sort of, even now if I, I’ll occasionally get sort of a little spot here [points to chest/collar], I wouldn’t wear anything that shows it cos I feel like that has more of an implication of, you know, “She’s not clean” rather than anything else, yeah.
Okay. So would you hide that acne like with clothing or anything?
I’d cover, I’d cover up with clothing. I wouldn’t, I wouldn’t put anything on it though I don’t think, yeah.
At first, Harriet didn’t realise seeing a dermatologist about acne was an option.
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At first, Harriet didn’t realise seeing a dermatologist about acne was an option.
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I didn’t even realise it was something that would have been an option. So sort of I kept going back to see if there was anything else they could do. But I never realised that sort of the end goal would be to get to see a dermatologist. But, but, yeah. So I, I didn’t realise quite how severe it was I think until I got to see the dermatologist.
Okay.
Because, yeah, as soon as he saw me he was like, “Okay, we’re gonna put you on the hard stuff” [laughs].
Harriet talks about her experiences with topical treatments.
Harriet talks about her experiences with topical treatments.
Harriet was told not to wax her legs whilst taking isotretinoin because the skin would be thinner and drier.
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Harriet was told not to wax her legs whilst taking isotretinoin because the skin would be thinner and drier.
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Oh, yeah. It, it’s most, mostly they all just tend to dry out your skin a lot. I know when I went on the Roaccutane (isotretinoin) he said, “Don’t wax your legs. Because if you wax your legs then because your skin gets so thin it will just like rip your skin off and you’ll bleed.” So I was like, “Oh, okay, I won’t” yeah. And it’s, dry skin is something I still, I didn’t, I never got it before but it’s something I still get now. And I think it’s probably a result of that. Roaccutane as well gives you really just like completely random periods. I had, it was about, it just, for sort of a few months there was just absolutely nothing. But, yeah. But the, the ones, sort of the external creams and things, they didn’t really have any major, major side effects.
So with the dry skin that sort of carried on since you took Roaccutane, how do you sort of deal with that on a day-to-day basis?
I just, you just moisturise I guess. Like I, it’s not too much of an issue with sort of arms and legs cos it’s, you just use like regular moisturiser once a day.
Harriet had expected side effects with isotretinoin, like disrupted menstrual periods.
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Harriet had expected side effects with isotretinoin, like disrupted menstrual periods.
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Yeah.
-- could you tell me a bit about how you felt about that and how you dealt with it? Was it a concern ever for you?
It wasn’t particularly a concern. I just sort of assumed, it kind of puts your whole body in a bit of chaos. So you just get, get this really dry skin and it can sometimes give you other side effects like just feeling quite down. So I remember getting a bit down for, like at various points and you just like, for, actually for no reason. And then you sort of think, you know, “No, this isn’t me. It’s just cos I’m on some like crazy medication” yeah. But you just sort of get used to it and learn to work with it and, yeah.
Were those side effects that your dermatologist or your GP, mostly your dermatologist for Roaccutane (isotretinoin), wasn’t it?
Yeah.
Were those things that the dermatologist had told you about before, to expect?
Yeah, I think he went through, sort of went down the list of all the things that were likely and not very likely and everything in between, yeah. So I, I sort of knew what to expect. And with, yeah, with the irregular periods it’s, you, I wasn’t really surprised because sort of everything else was just a bit weird. So it seemed like the natural progression, yeah.
Harriet read online about home remedies for acne and tried some out.
Harriet read online about home remedies for acne and tried some out.
Did you try any supplements or any sort of herbal remedy style things?
I remember, it, this was mostly when I was trying to get rid of the scarring, I remember using a lot of vitamin E oil, almond oil. I used, while I still had some acne I used, what’s it called? Tea tree oil. Which, it does that thing where it kind of, you put it on and it burns a bit so you think it’s working. And that kind of helped, but obviously it’s really strong smelling. The same with TCP, that had the sort of drying thing, but it just, the smell just stays on your face for the next two days. So I try not to use it any more.
Harriet finds that eating dairy products tends to give her more spots.
Harriet finds that eating dairy products tends to give her more spots.
[Laughs]
But, yeah, so I did, I did sort of read that you should, like dairy is, I read one, in one place that nothing you eat will affect it, but then I found that sometimes it does. So I wouldn’t eat, like if I eat eggs or cream or things like that, then it tends to, or it tended to get quite bad. So I’d avoid things like that, yeah.
Is that something you still avoid now like in sort of remission and recovery or...?
Yeah, well, I find it still has an impact. If I eat sort of a lot of dairy or anything like that, then I will tend to get more spots.
Harriet was aware of people taking photographs at events and was conscious about how her skin looked under different light (fluorescent light, daylight).
Harriet was aware of people taking photographs at events and was conscious about how her skin looked under different light (fluorescent light, daylight).
Would you ever avoid sort of events or going to certain places as a result of that sort of self-consciousness?
I don’t know if I’d go as far as avoiding things, but I def-, like events, but I’d avoid maybe certain people or people with cameras or… I was, I remember being quite conscious of sort of where I’d sit in a room or where I’d go, cos obviously certain lights make it look a lot worse. I knew that when my skin was oily fluorescent lights would make it look really bad, but if I sat next to a window with natural light it looked better. So thing, little things like that. I hadn’t even realised that I thought about those things, but it does, it takes up a lot of your brain space, yeah.
Although Harriet used to go swimming, the chlorine reacted with some of her face creams and made it painful. However, she enjoys sports generally, and has got back into them since she started university.
Although Harriet used to go swimming, the chlorine reacted with some of her face creams and made it painful. However, she enjoys sports generally, and has got back into them since she started university.
Although Harriet has tried lots of different brands she now goes for the “plain brands” (not scented or coloured).
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Although Harriet has tried lots of different brands she now goes for the “plain brands” (not scented or coloured).
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And in your experience what sort of things did you find were helping?
I just use, I kind of went through a phase of being like, you know, all the brands you see on tele and like, “Oh, that, that’ll clear my skin.” And it never does. So I just tend to use really plain brands, so just like one, one face wash, one moisturiser. And I just leave it at that. And don’t, I try not to fuss too much because I think that will probably aggravate it, yeah. So just face wash, and then you pat your face dry with a towel. You never rub it cos that will scar. And then moisturise. And that’s it, yeah.
I tend to now stay away from anything with like anything scented or coloured. You just, I try and avoid, I use face wash but I try and use soap-free face wash because soap has, is really drying for my skin. I try and use, I used to just use oil-free moisturisers but now I use ordinary ones, but again just sort of plain things. I now use facial scrubs occasionally, but that’s something that I never did when I had acne. Because it sort of like takes off, it’s only, cos it’s only really good, they say, “Oh, yeah, it’ll clear your spots.” But it’s only for blackheads cos that’s, like it scrubs away the blackheads. But if you’ve got, you know, whiteheads or cystic acne or anything like that, it just like scrapes away the top layer of your skin. It just makes scarring a whole lot worse. So I’ve got a friend who’s, he’s got quite bad skin at the moment and he, he just uses these, like a scrub every day, and I’m like, “No, you, you have to stop, because it’s not helping” yeah. So I use them now but I didn’t used to. And things like you shouldn’t scrub your face with a flannel and you should pat it dry.
When she was using a cream with a bleaching agent Harriet had to be careful about staining her clothes and using other people’s towels.
When she was using a cream with a bleaching agent Harriet had to be careful about staining her clothes and using other people’s towels.
Clothes wasn’t too bad, cos I was always, I didn’t realise it would bleach things. And it was only when I looked, I started to use my towel, then it’s, it was like, “Oh, okay, it’s.” And then I looked into it and I found that it was sort of a bleach-based thing. And from then on I was really conscious of, so like when I’m taking a tee-shirt off, I’d like carefully lift it over my face. I remember being quite conscious of other people’s towels in, if I went to stay over at someone’s house. So after I washed my face, I’d make sure I’d do it really thoroughly, and then just like try and pat it dry as gently as possible so I wouldn’t stain anyone’s towels.
Harriet was quite conscious of her acne, particularly when she was out of the house, and felt much more comfortable being at home with her family.
Harriet was quite conscious of her acne, particularly when she was out of the house, and felt much more comfortable being at home with her family.
Yeah, that does make sense. And with it sort of taking up so much sort of brain space and energy -
Yeah.
-when you were doing other things like whether you were spending time with friends, did you still feel you were holding back something cos you were processing or feeling self-conscious about it?
Yeah, it was, yeah, even with friends. It was less so when I was sort of at their house and it was just a sleepover or something, but it was definitely still always there, that I was always quite conscious of. The only place I wasn’t conscious about it was I think when I was at home with my family. Cos they kind of knew what I was going through and would talk about it more, I felt like I could talk about it more openly. So I could complain, be like, “Oh, my skin is so dry today. I hate this medication.” And they’d be, they’d sort of, they’d be like, “Oh, okay, yeah.” And it’s just like, you don’t expect a reaction like, “Oh, Harriet, I feel so bad for you.” But it’s nice to just feel, to, to voice it and have someone just like accept it and listen. So at home was where I felt most comfortable.
Having basic human contact with friends made Harriet feel like “a regular person”.
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Having basic human contact with friends made Harriet feel like “a regular person”.
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[Laughs]
So that, yeah, that’s one of the things that stays with me actually and yeah. It’s just wanting to be, it’s not really that you don’t get treated normally, but you’re always really aware that people might, might sort of intentionally be treating you extra normal. Yeah, but it’s, it’s nice when you have those sort of moments of human contact, yeah.
I was actually always really conscious of people not wanting to sort of be near my face because they might, they might get it as well. That was probably one of the nice things about someone actually touching my face. It’s like, “I’m not scared. It’s okay” yeah. And it, I feel like people make assumptions about, they sort of see you and think, “She must be doing something wrong” you know. Even though you’re sort of, you’re trying harder than everyone else to do something right, yeah [laughs].
When she was 14 Harriet felt no one would want her because of her acne. But now she is at university she is building up her confidence and realises physical appearance isn’t the only thing people notice about you.
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When she was 14 Harriet felt no one would want her because of her acne. But now she is at university she is building up her confidence and realises physical appearance isn’t the only thing people notice about you.
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In your experience, has acne had any impact on sort of relationships or potential partners?
Well, not really. Like I, sort of my group, whole group of friends, we were, we, there was maybe like seven girls and we all just kept ourselves to ourselves all through school and through sixth form. So like I never really had any kind of romantic interest or involvement during that time. Which was fine by me. But like obviously you think, “Oh, yes, I fancy them, they’re cute.” But sort of nothing would ever come of it because, you know, you’ve got acne and no one will want you. Or like that’s how I felt. But it’s strange when I look at other people and they maybe tell me that they’re self-conscious about their skin, and you don’t even register when you’re looking at someone else and you really don’t notice. And it’s such a frustrating thing because I wish I could transplant that knowledge into like the head of 14-year-old me. But people, they, they just like, there’s more important things when you’re meeting a person or talking to a person than what their face looks like, yeah. So, yeah.
So in practice, do you feel like having acne did hold you back from sort of talking to people that maybe you did sort of have a bit of a crush on or like a little bit?
I think I was probably just quite shy anyway, and acne probably, it probably contributed to that. But I’d have probably been like that anyway because I’d, sort of all through school I was quite shy and quite reserved. And it’s only, yeah, only in sort of the last year of sixth form and coming into university that I’ve actually started to build up my confidence. And I think maybe it would have happened, sort of that confidence building, might have happened sooner if I didn’t have acne. But, so it sort of prolonged a shyness maybe, but the shyness was definitely there anyway.
Harriet recalls teachers commenting that she didn’t contribute much in lessons and thinks that acne partly contributed towards her shyness at school.
Harriet recalls teachers commenting that she didn’t contribute much in lessons and thinks that acne partly contributed towards her shyness at school.
Although Harriet’s mother paid for her isotretinoin treatment, she thinks it was quite expensive and if she had had to pay herself it would have been something she would have had to think about.
Although Harriet’s mother paid for her isotretinoin treatment, she thinks it was quite expensive and if she had had to pay herself it would have been something she would have had to think about.
Harriet used the internet a lot and became “a self-confessed skin expert”.
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Harriet used the internet a lot and became “a self-confessed skin expert”.
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I was just comple-, like constantly on Google, like googling what foods are bad, what you shouldn’t drink or do. And like I mostly had my hair like tied up in a bun so it was all out of my face. I changed my pillowcase every single night. Like I’m an absolute skin expert now [laughs]. Well, a self-confessed skin expert.
[Laughs]
But, yeah, so I did, I did sort of read that you should, like dairy is, I read one, in one place that nothing you eat will affect it, but then I found that sometimes it does. So I wouldn’t eat, like if I eat eggs or cream or things like that, then it tends to, or it tended to get quite bad. So I’d avoid things like that, yeah.
Harriet read comments people had made on Boots reviews sections and Yahoo answers. She felt some forums only gave “a small fragment of a bigger picture”.
Harriet read comments people had made on Boots reviews sections and Yahoo answers. She felt some forums only gave “a small fragment of a bigger picture”.
Was there any information that you were looking for that you weren’t really able to find online in the searches?
I don’t know. It was sort of, the stuff I was missing I suppose was kind of actual people, cos online it’s all quite, I don’t know, it’s quite anonymous. And there’s people telling their stories but you don’t really know their back stories or how, like whether it’s worked long term and things like that, yeah. So I didn’t really know anyone particularly that had very bad skin or that, or knew and wanted to talk about it. So I tried, I sort of kept on, obviously it’s quite obvious when anyone looks at you, but I didn’t really talk about it in, sort of at school or with my family especially, yeah.
And so with the, like the reviews of products and like the answers that people gave, did you feel like it wasn’t enough information and not opportunities to ask?
Yeah, well, like they’re useful for sort of a little snapshot of what something’s like. But obviously you don’t really know what that person’s skin is like or what general sort of lifestyle they have or anything like that. So it is, it’s useful but it’s just, it’s only a really small fragment of a bigger picture.
Harriet says she would have found it useful to have had quite specific advice about managing her skin from her GP.
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Harriet says she would have found it useful to have had quite specific advice about managing her skin from her GP.
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