Experiences of trans and gender diverse young people

I would say from my experiences with, with GP’s hasn’t been great, I think some of the reasons that they’ve used that I’ve touched on briefly to validate them not prescribing hormones, have been borderline prejudice, I think there’s been a lot of I think, the healthcare professionals can hide behind a mask sometimes of not being a specialist, which, so and that mask then hides just general ignorance, and a general unwillingness to educate themselves about trans people, about their experiences and about their role supporting their access to healthcare.

So yeah, I think I’ve come across a lot of those masks, I don’t know if they’re masks for sure, because again to be a GP and to feel out of your depth with prescribing someone a medication is something that, that, that needs to be talked more about, and is a valid thing to say, and to feel, so I don’t know if they’re masks, but sometimes given the language that people have used, I feel like they, yeah, sometimes a professional will say, “Oh I can’t prescribe you this medication,” what they, what I hear and what they’re actually saying is, “I don’t want to prescribe you this medication.”

And I feel like given the amount of research which I didn’t know at the start of this journey, and I do now, which suggests that hormones are very safe to be prescribed, given the guidance that is now produced by the specialist clinics for GP’s, that’s not really an excuse. I don’t think a GP can turn around and say that they don’t want to do that, on, on ethical grounds because that’s, yeah, I don’t think that’s valid. So I think I’ve, to be honest probably given the experiences that other trans people have I think I’ve gotten off quite lightly, but I think I have experienced a little bit of, of how frustrating that can be, and how that can make you feel.

Yeah, I think medical racism, especially, I think one could possibly put more emphasis on that in a way, especially with the way of our current culture, but like it is a genuine thing like, like you know these archaic text books as well, that kind of thing, but also just the understanding of like that there is differences in the sense of what ethnicity means, and like risk factors and stuff like that.

But there’s also like things which are just not true or like, and it’s kind of it’s tricky especially, like I just, especially like there’s the issue of like I haven’t really experienced it myself but I know other PoC women have, and it’s kind of like where their pain is not taken as seriously and it’s a serious issue of like I can’t, oh, it’s happen, it happens in America, or there’s so many documented cases now, but like it happens here too.

But like I said, like a cis black woman will go into a surgery or something and they’ll, she’ll say like “I’m having crippling like abdominal pain,” or something like that and they’ll be like, “Oh it’s just your period,” but, and then it’ll be like they’ll go home and then it’ll still continue, days and it’s like well the doctor said it was my period so I’ve got to, like what else am I going to do at this point? And like it’ll turn out to be something very serious, and it’s kind of like, it’s taking that pain seriously I guess, and like really asking about what, what issues, like what, what, like taking to an extent, because there is like a, and it’s partially due to how, like society works on the fence of, because we live in a society that benefits white people. It just is.

And so a lot of PoC learn to hide pain, if that makes sense. They learn to like minimise the pain they’re feeling. So, a lot of the time it is kind of understanding about like when they’re saying they’re in pain, they are in pain. Because a lot of the time like, so I think it’s, the thing that best explains it, trying to explain this is like white people will, if they get ill with just almost anything, a lot of the time they will just rush to the doctor, like straight up, and that’s because they feel comfortable and confident doing so.

But whereas PoC on the other hand tend not to, and that’s pure, that’s due to like the issues of racism and and it’s because it’s become a weird cycle. And it’s kind, to kind of break that cycle essentially is like for doctors to understand and, like empathise with us that, and also kind of like just like take the kind of pain seriously, and stuff like that. Like I know I’ve been bad for it, I’ve minimised my own pain, even though like I should go to the doctor for something, like you know, and I’m terrible for it in the sense of like I’ll tell other people to go to the doctor for it, but when it comes to myself I’ll minimise it for myself because like I don’t want to put, I don’t want to be a burden essentially, that’s the issue, and like a lot of, it’s kind of an entrenched kind of, well I don’t know, maybe it’s a thing within, I guess it is, it is a thing within like PoC communities where like the sense of being a burden is an, a worry, especially on like, because like on your family or something. Like you don’t want to add more cost or anything like that, or like cause more issues and that’s, that’s the thing that you kind of want to avoid.

But yeah medical racism is something that’s, needs to be taken seriously, especially when it’s, especially now, with not only the ‘Black Lives Matter’ movement, but also Covid, it’s terrible. It’s like so many of like the front, like we don’t know quite why, we know to an extent, but obviously studies are gonna be, there’s still going to be ongoing way after this but like as preliminary stuff shows that like BAME people are more effected by Covid, and the theory is that it’s because that BAME people seem more expendable as front line workers, and I really hope that isn’t the case, but it seems more and more likely. But I also want to like people to understand, especially with the word BAME, because that’s the way that it’s, that they using an acronym, and it’s like, the, it means, it’s a meaningless word in medicine really, it really is, because like in medicine, like BAME covers too many ethnicities for it to actually matter.

Like it’s not, like we talked about it on the panel but something like DVT affects people with more melanin differently to from people with less, you know like and so it is very much like a complete useless word in term of medicine, so when people like, so like yeah it’s, and want like skin conditions and things appear differently on like and people like it’s a common, a common thing that PoC people will minimise, like heart attacks, like pain from heart attacks. And say that it’s like less, and like you know and that can cause a risk factor. So it’s like trying to, it’s a hard, it’s a hard thing, especially for something like pain, to understand that like it is, because it is very subjective in a sense, but like it’s too, it’s trying to make it a bit more relatable to your own pain scale, if that makes sense. And try and say like, when we’re doing like the one to ten pain scale, like when, when you say like, ‘Oh ten is like crippling pain,’ is the same kind of crippling pain that they’re feeling in a way, like is that what they mean? But yeah, that’s about it really.

So, first of all there was a lot of trying to talk me out of it or kind of talk me out of a referral and the things that I wanted out of a referral. And then there was some kind of almost wilfully misinformed. So things like the GPs don’t have to send you to for a, for a mental health assessment before they refer you. They can now refer you directly to a gender identity clinic, it’s been like that since 2011. So despite the fact that I was going there in 2015 yeah, they were still pushing for that and even when I was going to them saying, ‘No, it’s changed. Here are the guidelines and blah, blah, blah.’ Presenting with all this, this correct information they were very much kind of, ‘Oh well, you know I know best.’

So very set in their ways and reverting to old practice even when it’s not for, even when its four years out of date. So that was very frustrating. And I also, there was some kind of, sort of administrative errors that went on with my referral the first two times I tried. There were, took four attempts to get a referral. The first two times I think were my GP’s fault in that things like she didn’t tell me that I needed to get a blood test, so never sent the referral. And so, you know, I’d ring back a couple of months later going, ‘Was it sent to be accepted? She went, ‘Oh no. Never did it, ‘cos you need a blood test.’ ‘Well you didn’t tell me that.’ So there was, yeah, that kind of very much wilful blocking was very disheartening to deal with.

Information related to Trans healthcare is difficult you have to be your own healthcare advisor, your own GP, your own everything. So with my GP she’s lovely [laughter] however she had never had like a Trans patient so she was erring on the side of caution just quite worried about giving me the things I needed and so when I went to her to, I’d been going to her about my mental health for a little while and then I went to her to kind of explain like I think something that’s quite central in all of this is like my gender so can you refer me to Gender Identity Clinic. And she did, however I’m still waiting and that was two years ago, over two years ago that I was referred to the Gender Identity Clinic in [city] and yeah I’m still waiting to hear a peep from them. So in that kind of wait I decided that I needed to like take things into my own hands and so thank God there’s like a lot of information online, there’s people that run like Tumblrs and stuff that, I never really used Tumblr except for to find like Trans information but it’s been so helpful in terms of the healthcare information that they give you, I think like people run it as almost a, like anyone can write a question and then they’re quite trained, they’re either healthcare professionals that are Trans or like just Trans people that are really committed to helping other Trans people with healthcare. And so they write back your response and then you can read through everyone else’s questions everyone else’s responses and people do YouTubes and that kind of stuff and so that has been the main way that I’ve gotten information about Trans healthcare and how to go about obtaining the things that you need.

As a trans person who has to come into contact with healthcare professionals a lot, just because of the nature of the journey, some, I think you get, I think on one hand you almost get used to speaking to professionals, so on one level you kind of get used to walking into a room, having already educated yourself a little bit, and knowing that you might be questioned a bit so, not that you go into a room in a defensive way but you kind of almost go into a room knowing that you’re going to have to assert your own power in order to I guess get the support that you need sometimes.

So, and I don’t think that’s something that’s obviously you know, it’s, it’s not just an experience that trans people have, but I think that it’s, it’s something that as trans people you just get used to doing every time you walk into a room with a healthcare professional in one. I think that being said though, it can be very easy then to go into a room with this sense of power, and this purpose, and to then be disempowered very quickly when that professional for whatever reason, it’s not, you know if the professional has a reason, I think, for not supporting you for whatever reason, then sometimes that’s valid, and sometimes I think there is room for challenge, because as a patient you’re the expert in terms of yourself, but you’re not an expert when it comes to that, you know medication, and diagnoses all the time.

So that being said, you know I think it can be, yeah you can be disempowered quite quickly and sometimes it happens, like I say sometimes it happens for a reason and sometimes that’s okay, sometimes it happens and it’s not okay. So sometimes you can be challenged by a professional, like I was on illegitimate grounds, and in a way that then invalidates not only what you went in there to say, but also you as a person, and that can stay with you for quite a while. So, going into a room with a healthcare professional and having a conversation with, with a professional can be a very scary thing.

And I guess what terrifies me I think is that, for me, having a Mum that’s a healthcare professional, and being a healthcare professional myself, you know I’m going into these spaces and I’m coming away exhausted, having had that experience on the other side and, and being in a position where I’m, you know relatively I guess in a good place mentally, to manage those power relations. When you’re a young person or somebody who is not in that place then it’s an even scarier thing.

I wanna know what’s gonna happen to me. I think there’s this narrative that trans people need to educate their medical staff, which is great. It’s fantastic. It’s like yeah, yeah, like they need to learn. They don’t know what they’re doing. Often, I find myself doing that like I’ll be telling my doctor what’s up. I want like my doctor to just not assume that I’m an expert on my own body. Like I want a doctor to do some doctoring. You know to be like, this is what’s going to happen. Do you understand? It sounds pathetic, but like I kind of want to be shown some yeah. It’s like, you know, someone, who just has confidence. I don’t think GPs have enough confidence. That isn’t me empathising with their ignorance, that’s me empathising with their genuine inability to have been educated about it [Laughs]. It’s very strange that there aren’t trans GPs doing this. You would think that more trans people would have gotten out of medical school and started practicing by now. But no and that’s what’s really strange as well is it’s so disparate.

And I also think that, you know, the first informed consent clinic in London is about to be set up. Which is gonna absolutely change the game in terms of access. But what’s that gonna do in terms of like GPs feeling like they have the impetus to learn things. They’ll be like oh well that’s fine, they can get it wherever they need to now. Like as opposed to being like, wait, this is gonna to increase precarity and it’s going to reduce the amount of people applying to GIC which will overall effect statistics in the way the government isn’t taking it seriously enough and they won’t get any funding. The whole thing is going to collapse, like putting a band aid on the problem. GPs need to have the power to like examine people and help people and diagnose people with dysphoria if that’s what they need. And prescribe hormones if that’s what they need. It just feels, it feels like the whole thing about like you need to educate your GPs. It’s like, well, I shouldn’t. They should be good enough doctors to know [Laughs] I am sorry. It feels a bit like I don’t take much joy in having to construct my own transition. I want there to be a framework. I want there to be people who have some expertise. I feel like trans people, the whole thing about like trans people being experts of their own bodies. It’s like, well yes, but I’m not an expert of my own liver function. I’m not an expert of my own like my own spermatozoa production. I’m not an expert of my sleep cycle and my muscle to body mass ratio and these things are things that I want, I want an endocrinologist to talk to me about or a GP who knows something about endocrinology and trans people to talk to me about it.

I think like again it’s just another GP who hasn’t been trained in sort of like Transgender people but it’s annoying because like as a GP the internet is right there you can just look, that’s what we’re all doing we’re all just looking stuff up, you know. We haven’t been told this by like a general like medical professional it’s all been stuff that we’ve had to go out and research ourselves. So I kind of, I guess it’s a little bit infuriating that a lot of GP’s sort of play the whole naivety card like well, you know, I don’t know about this, this is all so new and it’s like there’s been transgender people about for like hundreds of years, like, you know, there’s something you can quite easily look into yourself just get a few terms right and just learn what people sort of want to get out of that. And like nine times out of ten if somebody is coming to you with sort of like gender queries, you know, they’re questioning their gender you can just say to them would you like me to refer you to like to the clinic or there are Trans groups about, like probably if there was more stuff in GP waiting rooms, you know, there’s loads of stuff about, you know, like oh get help, you know, like prostate checked, you know, cancer screenings and stuff but there’s not, I didn’t see a single thing about being Trans it’s all very like not like hidden but it’s not advertised, so I guess it’s sort of this idea that, you know, that you’re not gonna know a lot about it unless you research it yourself.

So I think in terms of visiting GPs when it comes to visiting regarding gender issues or trans stuff I feel like I’ve always had to go in doing more of the explaining, so I can’t go in and be like ‘I have this problem help me,’ it’s more ‘I have this problem and this is how I need to fix it can you just please do this one thing for me so that I can access this service?’ So in terms of getting referred to gender services I couldn’t, I went into my GP and was like ‘I would like to be referred’ and they were like ‘No we can’t do that and we don’t know how to do that like we’re just, like we don’t understand’ that’s why actually I ended up having to go back several times and in the end I took, I literally took the pieces of paper and was like ‘Fill these in, send them to this address please like this is what you need to do’ because they just weren’t able to help me. And then I found in terms of accessing GP’s for other medical stuff they always try and blame it on trans issues so like for physical health reasons going to GPs and they’re always like ‘Oh it’s like the testosterone you’re taking, it’s the hormones’ it’s like ‘No, no I’m pretty sure it’s not the hormones doing this like there is a lot more to my health than just being trans’ So I’ve always found it a really challenging experience going to GPs.