Experiences of parents and carers of young trans and gender diverse people
Finding information
- Sources and quality of information;
- Websites and social media;
- Online support groups and forums;
- Magazines, books and television programmes; and
- Reading international guidelines.
Sources and quality of information
Kate talked about lack of information and how information should be easier to access.
Kate talked about lack of information and how information should be easier to access.
I don’t think there’s a lot of information so, you know, you have to go and kind of try and find stuff out for yourself. And so, I know that there is loads that I don’t know. Absolutely loads that I don’t know. And information that might be helpful to me and therefore to him and to the people around us that, you know, with my husband and my other son. So, I do think that’s a problem. I do think having to, you know, not saying things like Mermaids. They should absolutely exist, but that shouldn’t be your primary source of information. You know, if you, if you were accessing healthcare for another reason, you wouldn’t have to go to a support group or an interest group or something like that to get information. And so I do think that that is, I do think that is a difference with accessing trans care for trans kids.
VM said she found it upsetting to look for information online because there was a lot of information about discrimination and violence against trans people.
VM said she found it upsetting to look for information online because there was a lot of information about discrimination and violence against trans people.
Obviously, I went to lots of websites and trawled through some websites.
How was that experience?
Poor, really. Because you just read loads of things. I mean, I think I've sat down and read lots of things. And then I got very, very upset. And then I called, I found a support group and so I've got to talk to someone. I'm not [sighs] I'm not [laughs] I don't want to read and assimilate information. I want to talk to someone about it. I'm better with one to one or in a group talking about it than I am about sitting down just, you know, reading stuff. So that's, that is the way I did it, really.
So what was upsetting about finding the information online?
Oh, there was just lots of things. How long people would wait or how, I mean there is lots of stuff out there about how people trans people are discriminated against. How, you know, violence against them. There's lots of that stuff out there. It does make you depressed. You do think to yourself, you know, this is not a life I envisaged for my child. And how tough is this going to be? So I think that's looking online can make you do that.’
Websites and social media
Lesley talks about finding a broad range of information on trans issues.
Lesley talks about finding a broad range of information on trans issues.
Where do I get it? Well, I get it from the World Professional Association for Transgender Health. Because of my professional role, I have been able to become a member myself. I get first hand access to all of that. There’d a lot of academics who are trans or trans friendly on Twitter. They can give you links to their work and because I’m both an academic and a student I can get past the pay wall and have access to the journal articles and stuff like that. Plus there’s loads of really great, good books out there by people who are trans so I’ve read quite a lot of them and speak to parents who have experienced a wide variety of different services as well. I link into Mermaids and their residential zone and their forums. I try to get the biggest broad view as possible.
Adele thought watching YouTube videos by trans people was informative, realistic and reassuring.

Adele thought watching YouTube videos by trans people was informative, realistic and reassuring.
I mean it wasn’t just a one off thing. I did it, you know, it was, it was over sort of weeks, you know, days, weeks, months and continuing going back to it. Just sort of thinking back it was the thing I ended up doing quite a lot of actually was looking at examples of other people who were transitioned, so obviously trans men, cause that was the, to kind of really understand from their own experience and their own voices. And to put my mind at rest as well that actually you being trans it wasn’t this kind of this life of you know, misery or bullying or whatever. It was really, it was really, really reassuring to me as a parent to be able to see those positive stories. But also, you know, real, realistic you know, and talking about things that I wasn’t even kind of aware of. I mean there was, you know, YouTube, I ended up kind of on YouTube and I think that’s really important, because you actually see the person. It isn’t just reading something of a faceless person. And Alex Bertie YouTube videos were kind of like a godsend to me. But they were, they were really truthful as well. They were talking about the bad and the positive, but actually, you know, talking about his journey. But it was really good to see somebody who was kind of going through that, you know, a few stages ahead of where my son was. So I found that useful. I found it really difficult, I suppose, finding a lack of official resources and there wasn’t really any kind of guidance at all for parents. And I think there still isn’t, you know, really.
Online support groups and forums
Oonagh talked about a range of online sources of information that she found useful.
Oonagh talked about a range of online sources of information that she found useful.
I must say that the main, the main resource that's still Mermaids and still the parents that post on the forums. So, I'm a member of the Facebook group and the forums on there are the best, the best information you can get for a practical, practical support, because you can read as much as you want on the in articles and research, but if you want practical advice on different ages of children and what's happened to people and what's, you can find out so much more through the forum. So I mean, they are the main support, the parents and getting to know if you've got any questions you can go and ask the other parents, you know, “has anybody got any experience of this?” Little things like does anybody know where to get good underwear, you know, for children, trans girls, that sort of thing. There's nothing like that anywhere, apart from asking other parents and getting recommendations, swimwear, you know, a child wants to go swimming, you've got a whole other dimension to think about. You've got all these things to think about. If they're confident about going in the swimming pool then they'll be, they'll like, they can go swimming. Swimming costumes is an important aspect of that to be able to do it. It's like all these things. But you don't get that sort of practical support anywhere else. So I would say the parent forums on Facebook are the most, on the Mermaid's forum, are the most important place. But then if you want, if you want background information about the research that's been done then yeah, there's research papers. But that can be confusing as well, because you've got so many conflicting papers about and you hear things quoted that you can't necessarily rely on and so there should there are organisations like Gendered Intelligence and there's another one, I can't remember there's a few different organisations that you can rely on and Stonewall even you can rely on for good information. So I would go to those organisations probably first and then look at their resources of what they recommend to read.
Lisa talks about information she got from Mermaids.

Lisa talks about information she got from Mermaids.
The best information I had come from Mermaids. They had a, when I first contacted them they had a package, a sort of ready-made package of information that they sent to me. The reason why it was so helpful is because the remit was wide. It was easy to find its way around. So, it was sort of in organised in sections. It was available to me quickly, literally, I had it within a couple of hours. And it was helpful in that it signposted me to legislative provision to, you know, policy to, it was really, it was really helpful. And it gave me a really good head start in loads of different areas. And I could then take what I needed from that and develop my learning and read around whichever given subject matter was relevant to us at that time. There does tend to be a bit more information available now on the internet, but it’s kind of watered down a little bit. It seemed, but compared to any other ‘condition’ for want of a better word that would be treated by the NHS there still is very little information, very little objective information available.
Magazines, books and television programmes
Magazines and TV programmes were a source of information about gender identity for Georgina.
Magazines and TV programmes were a source of information about gender identity for Georgina.
There's a couple of really, really good documentaries as well that I watched very early on, which really helped me to understand, not that I needed to accept, but I did need to understand what [participant’s child’s name] was going through to help him. One of them was the National Geographic which happened to come out in the January after he came out. So there were two magazines and then the company programme that Katy Corrick did and I think it was called, The Gender Revolution. So the magazines and the programme combined were really informative. There's loads of information and detail in there about the spectrum. Different countries having different things. And it really made me realise that it's both, is it a, are we called, Westerners, we are aren't we. Our idea of gender is very different to most of the rest of the world. And that was a bit of a revolution to me, cause I was like, oh, oppression, I get it, you know [laughs]. I didn’t really understand before. I'm one of those people that doesn't really watch the news and I'm not really up on current affairs. It just confuses me and upsets me, so I just kind of ignore it. Which has meant that I've not really, it's passed me by this kind of stuff until now.
So those programmes and those magazines were fantastic. And I always think things that you can hold and read and look back on are really useful. The magazines were great, cause, you know, I've still got them. And it means that I can show them to other people and say, have a quick look at this, if you're not getting it. If I'm not explaining it right just have a quick look and see if this helps. But it was written really well, it wasn't all, it wasn't jargoned, you know. I'm not a jargony person. I don't understand jargon. So, I found that very useful. There was also, I think there was a programme Louis Theroux did, and I think he was in America, and it was very balanced.
Reading international guidelines
Interview 1 thought the NHS model of trans healthcare was not affirmative enough.

Interview 1 thought the NHS model of trans healthcare was not affirmative enough.
I started doing that and started looking at what's been published. Started looking at guidance from the NHS and also looking at guidance from healthcare services in other countries. Looked at what American healthcare services were saying. Looked at what Australian healthcare services were saying just looked very thoroughly at what was being recommended and what was the evidence base underpinning it and kind of looked down at the small number of academic publications that were underpinning some of the recommendations and it was clear that there were different recommendations coming from different health services and so I really wanted to spend the time looking at what, why there is that difference between different health services and for me, that difference was really, really critical cause we were at a point where we had a seriously depressed child and the advice that that was available from the American healthcare system was at odds with the advice from the UK healthcare system…. The things that have helped me most have been clear guidance from medical professionals clear reassuring trans positive guidance from medical professionals and so particularly the, there's a healthcare guide from the American Academy of Paediatrics which is written for parents and families and it's written in very clear reassuring, friendly language and that resource was really useful to me and I wish there were something similar in the UK. And more recently there's an Australian healthcare resource about for supporting trans children and adolescents. And again, it's very trans positive, it's very accessible and it's very clear and it's very affirmative.