
Other types of medical research
Sometimes young people we interviewed used the word ‘trial’ to describe other types of research and were not always clear about the difference. (See also ‘Why do we have clinical trials in children and young people’ for an explanation of the different types and stages of clinical trials and ‘Different types of trials’.)
- Age at interview:
- 18
- Sex:
- Female
- Background:
- Heather, aged 18, is White British, has one brother and lives with her parents. She enjoys rock climbing, playing the piano and reading. Heather's mum volunteered for her to take part in a clinical trial at their local hospital. Heather took part in the trial as a healthy control.
- Age at interview:
- 18
- Sex:
- Female
- Background:
- Heather, aged 18, is White British, has one brother and lives with her parents. She enjoys rock climbing, playing the piano and reading. Heather's mum volunteered for her to take part in a clinical trial at their local hospital. Heather took part in the trial as a healthy control.
- Age at interview:
- 18
- Sex:
- Female
- Background:
- Heather, aged 18, is White British, has one brother and lives with her parents. She enjoys rock climbing, playing the piano and reading. Heather's mum volunteered for her to take part in a clinical trial at their local hospital. Heather took part in the trial as a healthy control.
- Age at interview:
- 17
- Sex:
- Male
- Background:
- Christopher is 17 years of age, White British and lives with his parents and elder sister. Christopher is currently studying for his A levels. His hobbies include archery, computing and rifle shooting.
- Age at interview:
- 17
- Sex:
- Male
- Background:
- Christopher is 17 years of age, White British and lives with his parents and elder sister. Christopher is currently studying for his A levels. His hobbies include archery, computing and rifle shooting.
- Age at interview:
- 15
- Sex:
- Female
- Age at diagnosis:
- 7
- Background:
- Kerenza is 15 years of age, White British, attends a local school and lives with her parents and sister. Kerenza enjoys dancing. She was diagnosed with chronic juvenile idiopathic arthritis at the age of seven.
- Age at interview:
- 15
- Sex:
- Female
- Age at diagnosis:
- 7
- Background:
- Kerenza is 15 years of age, White British, attends a local school and lives with her parents and sister. Kerenza enjoys dancing. She was diagnosed with chronic juvenile idiopathic arthritis at the age of seven.
- Age at interview:
- 13
- Sex:
- Female
- Age at diagnosis:
- 3
- Background:
- Alisha is 13 years of age, White British, lives at home with her parents and siblings and attends a local school. Alisha was diagnosed with arthritis at the age of 3 years.
- Age at interview:
- 10
- Sex:
- Female
- Background:
- Georgia is aged 10, is White British, attends a local school and lives with her mum and siblings. She loves dancing, swimming and athletics and is in the school athletics team. She is also a member of Brownies. Georgia was diagnosed with arthritis when she was 18 months.
- Age at interview:
- 23
- Sex:
- Female
- Background:
- Kay is 23 years of age and was diagnosed with cystic fibrosis at the age of two months and Diabetes at age 18 years. Kay lives with her parents, works part time for a charity, describes herself as Welsh and has an older sister who lives away from home.
- Age at interview:
- 23
- Sex:
- Female
- Background:
- Kay is 23 years of age and was diagnosed with cystic fibrosis at the age of two months and Diabetes at age 18 years. Kay lives with her parents, works part time for a charity, describes herself as Welsh and has an older sister who lives away from home.
- Age at interview:
- 12
- Sex:
- Female
- Age at diagnosis:
- 11
- Background:
- Fflur aged 12, is Welsh, and lives with her parents, brothers and sisters. She attends a local school and loves to do crafts in her spare time.
- Age at interview:
- 12
- Sex:
- Female
- Age at diagnosis:
- 11
- Background:
- Fflur aged 12, is Welsh, and lives with her parents, brothers and sisters. She attends a local school and loves to do crafts in her spare time.
- Age at interview:
- 13
- Sex:
- Male
- Background:
- Jhon, aged 13 is White British, lives with his parents and attends Secondary School. He enjoys 'making a difference', swimming, reading and being with friends. Jhon was diagnosed with Osteogenesis Imperfecta in the womb.
- Age at interview:
- 13
- Sex:
- Male
- Background:
- Jhon, aged 13 is White British, lives with his parents and attends Secondary School. He enjoys 'making a difference', swimming, reading and being with friends. Jhon was diagnosed with Osteogenesis Imperfecta in the womb.
- Age at interview:
- 13
- Sex:
- Male
- Background:
- Jhon, aged 13 is White British, lives with his parents and attends Secondary School. He enjoys 'making a difference', swimming, reading and being with friends. Jhon was diagnosed with Osteogenesis Imperfecta in the womb.
The last thing I heard was sort of that day when they did the tests, sort of just saying that I was okay. And that’s the last thing I’ve heard. They’ve said that sort of they’ll be doing the tests, they’ll look at them overall, but it’s not going to be sort of for a while until sort of, because they’re saying those surveys that have been done by parents will be used and compared with the tests. And they’ll look at you overall sort of when we’re adults, sort of so they can look at a whole childhood. And then they will sort of be looked at overall from everyone that’s been involved.
So it’s, because it’s ongoing, so it’s not going to, they’re not going to know anything till the end. So I wonder if you’ll get anything in between that to say, “Well, this is where we’re at now.”
I think it would be nice to sort of know how it’s, sort of how they’re doing with it all. Because sort of it was sort of very much, “You’re going to do this now” sort of these tests, and I’d not heard anything from them before. And I’ve not heard anything since.
Last reviewed March 2017.
Last updated July 2014.