Messages to parents

Parents of young people with arthritis had advice they wanted to share with other parents in a similar situation. Here is what they had to say:
• Life can be good but sometimes life can be hard. Try to stay positive by remembering what life is like on a good day. 
• Don’t be afraid of the medications. They are there to help your child and you can always ask the doctor about other options. 
• If you are having difficulties finding information then ask for help. Be determined to find answers even if you feel the questions are daft. 
• You’ve got to have the courage to fight for what you need and to stand up to people if they are not helping enough. 
• Make sure you know about all the financial entitlements your child and family can receive. 
• You can ask to see another doctor if you are not happy with your child’s treatment. 
• Be open and honest with your children. 
• Your mental health affects your child’s wellbeing. Get help if you need it. 
• There’s light at the end of the tunnel. 

Last reviewed November 2018.

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