Screening for sickle cell and beta thalassaemia

Interview 10

Age at interview: 33

Brief outline: Mother discovered from antenatal screening she was a carrier of haemoglobin C. The baby's father was no longer in the UK to be screened. A newborn test showed the baby had SC disorder.

Background: Full-time mother, single, one child aged seven months. Ethnic background/nationality' Black African.

Audio & video

This mother had screening during pregnancy and discovered she was a carrier of haemoglobin C. The baby's father was no longer in the UK and was not screened. She hoped the baby would not be affected, but newborn screening showed the baby had SC disorder, so the baby's father must have been a sickle cell carrier. So far the baby has been well, and the mother feels she has been very well supported and informed by her local sickle cell counsellors. 

She believes screening is important, even if the test results can be upsetting. Her message to other parents is that plenty of care and support is available for people affected by sickle cell disorders, and they should not give up hope. 


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