In this section you can find out about the experience of motor neurone disease by seeing and hearing people share their personal stories on film. Our researchers travelled all around the UK to talk to 47 people (including 11 carers) in their own homes. Find out what people said about issues such as symptoms, diagnosis, communication and treatment. We hope you find the information helpful and reassuring.
You can start viewing topics by clicking 'Next Topic' above, or selecting from the list on the left. You can also view 'People's Profiles' from the tab above.
NHS Service Delivery and Organisation Research and Development Programme
Publication date: March 2008
Last updated: August 2017
Review date: August 2019
Please use the form below to tell us what you think of the site. We’d love to hear about how we’ve helped you, how we could improve or if you have found something that’s broken on the site. We are a small team but will try to reply as quickly as possible.
Please note that we are unable to accept article submissions or offer medical advice. If you are affected by any of the issues covered on this website and need to talk to someone in confidence, please contact The Samaritans or your Doctor.