We would like to thank everyone who participated in this research for donating their time and experiences. We are grateful to everyone who supported this study, and all those who helped with recruitment.
The NIHR Biomedical Research Centre Oxford is a partnership between the University of Oxford and Oxford University Hospitals, funded by the National Institute for Health Research (NIHR).
Patient and public members
Sally Crowe, Crowe Associates, and James Lind Alliance
Simon Denegri, Chair, INVOLVE, and National Institute for Health Research (NIHR) National Director for Public Participation and Engagement in Research
Alison Ford, formerly Patient and public involvement manager, NETSCC (NIHR Evaluation, Trials and Coordinating Centre) – now Head of Engagement, NIHR Dissemination Centre
Christopher McKevitt, Reader in social sciences and health, King’s College London
Norma Morris, Research fellow, science and technology studies, University College London
Alison Monk, Communications and Public Involvement Officer, Thames Valley Diabetes Local Research Network
Richard Thomson , Dean of Patient and Public Engagement for the Faculty of Medical Sciences, Newcastle University
Sophie Staniszewska, Senior Research Fellow in Patient and Public Involvement and Patient Experiences, University of Warwick
Mark Taylor, Central Commissioning Facility, National Institute for Health Research/Oxford Biomedical Research Centre
Sophie Petit-Zeman, director of patient and public involvement, NIHR Oxford Biomedical Research Centre
Health Experiences Research Group members:
Chair: Louise Locock (Director of Applied Research) and Health Experiences Fellow, Oxford Biomedical Research Centre
Helen Salisbury (Medical Advisor)
Anne-Marie Boylan (Senior Qualitative Researcher)
Jo Crocker (NIHR Oxford BRC Research Fellow)
Vanessa Eade (Project Administrator)
The research was funded by the National Institute for Health Research (NIHR) Oxford Biomedical Research Centre based at Oxford University Hospitals NHS Trust and University of Oxford. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health.