Shared decision making

Interview 21 - Screening for sickle cell and beta thalassaemia

Age at interview: 31

Brief outline: Both partners knew they were beta thalassaemia carriers. Second child born with beta thalassaemia major. Mother has had CVS in two pregnancies since, and would terminate the pregnancy if the baby was affected. Video and audio clips read by an actor and recorded in Mirpuri.

Background: Married housewife, four children aged 10, 9, 8 and 2. Husband unemployed. Ethnic background/nationality' Pakistani.

Audio & video

For more clips from this interview click here.


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