Heart failure

Support groups

There were mixed views about support groups among those we talked to; some said they hadn't tried them and thought they were just not their 'sort of thing', while others said they were a lifeline. One woman said she found that sharing her problems with others in the group helped her and she enjoyed the social side of it. Others talked about the money support groups raised for hospital equipment and the social events they organised which encouraged people on their own to go out more. Apart from the social aspect of support groups, one carer said that his support group helped to keep him up to date with the latest research on heart disease.

Several people we spoke to had been involved in setting up or running a local support group for people with heart failure, cardiomyopathy or implanted devices (ICDs). Some also acted as a ‘buddy’ by giving individual support to people newly diagnosed or newly fitted with an ICD. Not all support groups operate on a face-to-face basis. Some people we spoke with belonged to an online heart failure support group, enabling them to chat to other members over the internet or by phone, which they found helpful.





 

Last reviewed April 2016.
Last updated April 2016.

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