Lord Stone of Blackheath

Lord Stone was raised to the peerage in 1997. He joined Marks and Spencer plc as a trainee in 1966 and retired from his position as joint Managing Director of the Company in 1999. His community work has been based around his fascination with the juxtaposition between Art and Science, healthcare, working with charities to help bereaved children and a lifelong interest in the process of creating understanding and working towards peace in the Middle East.
Board of Trustees

Professor Sean Hilton MD FRCGP FAcadMEd DSc(hc) (Chair)

Professor Sean Hilton succeeded Fred Hucker as Chairman of the DIPEx Charity in December 2016. Patient involvement and education has been a theme throughout his medical career. His MD Thesis on evaluation of patient education in asthma was carried out in general practice during the 1980s.

Sean is a medical educator and academic general practitioner. He is now Emeritus Professor of General Practice and Primary Care at St. George’s, University of London. During a full time career at St. George’s from 1987 to 2012 he held additional roles as Dean of Undergraduate Medicine, Vice Principal Teaching and Learning and Deputy Principal. Since 2012 he has also been Professor of Medical Education at the new medical school of the University of Nicosia in Cyprus (Dean for Clinical Education 2012-15).

Sean was President of the Academy of Medical Educators (AoME) 2011-2014, and is a past Executive and Council member of the Association for Study of Medical Education (ASME). He has held roles in quality assurance also for the General Medical Council;HEA Quality Assurance Agency and a number of UK and international universities.

He holds an Honoris causa Degree in Health Sciences from Kingston University (2013) for his contributions to interprofessional learning.
Now mostly retired, he is also a Trustee of the Princess Alice Hospice, Esher.

Pauline Droop

Pauline is a solicitor who worked for 15 years for the Citizens Advice Bureau, initially as a generalist but ultimately developing an employment law specialism. She then moved into private practice, becoming a partner in the employment department of Russell-Cooke LLP. She has now retired but continues as a Consultant. Pauline is an Honorary Solicitor to West London Action for Children, a charity providing counselling and support to disadvantaged children and their parents and/or carers in west London.

Dr Judy Kane

Judy is a GP who qualified from St. Georges Hospital in 1968 and started an audio-visual aids programme for teaching medical students at the hospital. Judy became a trainer in 1985 and sat on the Trainer Selection Committee for the Surrey area. Attachments to the National Heart and Lung Institute and to St. Georges Hospital medical school ensured a steady supply of pre and post grad students for our practice to teach. For 15 years she was on the Elizabeth Nuffield Education trust committee and oversaw the giving of grants to students. Judy is a fellow of the Royal Society of Arts and chairs the South West London advisory committee for the appointment of magistrates. Judy still does a couple of days in general practice but no admin!!

Jane Kirk

Jane is a HR and talent consultant with a deep connection to improving health and wellbeing. She started her career as a research clinical pharmacologist before working in the pharma industry as a new product introduction manager. In 1997 she joined a disruptive Search and Intelligence consultancy to establish their global Healthcare & Life Sciences practice. Working with major brands she helped them create an effective business and people strategies as well as supporting NHS and other social and health organisations with a range of recruitment solutions. Throughout she also led business development and marketing and was commercial director of her firm. Alongside supporting healthtalk.org, she now runs her own business providing leadership solutions to businesses to unlock organisational performance through their people.

Mike Russell FCMA

Mike is a Fellow of the Institute of Chartered Management Accountants, having qualified as an Accountant in 1979. For over 20 years, Mike held various financial and general management roles within Oxford Instruments Plc including spells as FD of the Medical and Superconductivity Divisions and spent two years living and working in the USA. From 1992 to 2006 Mike was a Non-Executive Director in the NHS in Oxfordshire with three terms (92-01) of office with the Oxfordshire Community Health (NHS) Trust and two (01-06) with the South West Oxfordshire PCT serving both trusts throughout this period as Audit Committee Chairman as a member of various other committees. Since 2006 Mike has been the Finance Director of the Zoological Society of London, the conservation charity that runs London and Whipsnade Zoo and runs over 50 conservation projects in Britain and worldwide through its scientific arm, the Insitute of Zoology.

Mary Wells

Mary is Professor of Cancer Nursing Research and Practice at the Nursing, Midwifery and Allied Health Professions Research Unit (NMAHP-RU), University of Stirling, Scotland UK.  She is a cancer nurse with a clinical academic background in health services research within oncology. After graduating with a degree in Nursing Studies from Guy’s Hospital London, she went on to specialise in cancer nursing at Bart’s Hospital London.  She has worked in a variety of leadership, clinical and research posts in London, Oxford and Scotland and she was the first Centre Head at the Maggie’s Cancer Caring Centre in Dundee.  She works closely with a number of leading UK cancer charities, was a member of the Executive Board of the European Oncology Nursing Society (EONS) from 2009 – 2015 and currently co-chairs the EONS Research Working Group.  

Her research focusses on supportive and psychosocial care, nurse-led initiatives and specifically the needs, experiences and outcomes of people who have completed treatment.  She has a particular interest in head and neck cancer and has experience of a range of methodological approaches, including qualitative research and trials of complex interventions.  Mary has been a member of the NCRI Psychosocial Oncology and Survivorship Clinical Studies Group (CSG) since 2013.
Charity staff

Adam Barnett - Head of Technical Development and Operations

Adam Barnett joined DIPEx in 2008 from his former position as operations team leader at a web based, VC funded company. His current role as Technology manager involves overseeing the effective and efficient operation of all technology for the charity. Including deriving, implementing and managing the strategy for technology developments that provide solutions for all aspects of the organisation’s activity and development.

Jo Kidd - Communications Manager

Jo has been working for DIPEx since Autumn 2010 and is responsible for managing our social media presence, website content and marketing among other things! In previous roles, Jo has worked for charities campaigning on poverty, the environment and human rights, carried out research for campaigns for adults with autism and developed websites for HIV & Aids charities as a volunteer in Lahore, Pakistan. 

Tracy Noble – Administrator

Tracy is an experienced office manager/administrator with a progressive career record that has embraced general, sales office and HR management in a broad range of high-technology, consumer, business and industrial sectors. She has worked in large multi-national corporations, medium size blue-chip organisations and VC funded start-ups.
Health Experiences research group University of Oxford

Prof. Sue Ziebland - Director

Sue has been involved with healthtalk.org since 1999 as part of the original steering group formed around the kitchen table of co-founder Ann McPherson. Sue has worked closely with colleagues in the research group to develop the methods used to carry out the research that appears on the website. Sue’s background is in medical sociology and her research interests include people’s use of the internet for health information and qualitative research methods.  In 2010 she started a 5 year NIHR programme on the use of patients’ experiences on the internet.

Dr. Louise Locock- Director of Applied Research

Louise joined the Health Experiences Research Group in 2003. Louise researched our sections on Antenatal Screening, Pregnancy, Screening for sickle cell and beta thalassaemia and Motor neurone disease. In recent years she has specialised in experiences of research participation, including completing sections on Clinical trialsBiobanking and Patient and Public Involvement in Research. With colleagues Louise is researching how patient experience narratives can inform NICE guidelines and quality standards, and NHS Commissioning.

Dr Sara Ryan - Research Director

Sara has been working with the Health Experiences Research Group since 2006 and researched our sections on autism, Jewish health and Learning Disability and Health. She has a background in sociology and anthropology and gained her PhD from the University of Warwick. Sara’s research interests are around disability (particularly learning disability and autism), qualitative research, health experiences and finding ways to include seldom heard voices in research. Sara was a lecturer in Sociology at Oxford Brookes University before joining HERG and has also taught at the University of Warwick and Royal Holloway, University of London.

Dr. Helen Salisbury - Clinical Director

Helen is a GP and also teaches medical students about communication. She has led the communcation teaching for Oxford medical students since 2006 and joined the HERG as medical advisor in June 2011. Her research interests include the use of patient experience materials in medical education and how we can tell if they make a difference.

Dr. Anne-Marie Boylan - Qualitative Researcher

Anne-Marie joined HERG in 2010 and has conducted research for our sections on Life-changing injuries in London, Autism, Patient and Public Involvement in ResearchScreening for unrecognised heart valve disease, Biobanking, Shared decision-making between patients and doctors.  She previously studied and worked at Queen’s University Belfast where she gained her PhD. Anne-marie’s research interests include people’s experiences of acquired disability. She teaches Interpretative Phenomenological Analysis, Interviewing children and Ethics in research. Anne-marie is currently working on a project about experiences of patient and public involvement (PPI).

Dr Alison Chapple - Senior Research Fellow and Research Lecturer

Alison Chapple is a medical sociologist, and a University Research Lecturer. She joined HERG in 2000 and was the first researcher to contribute to Healthtalkonline.org. Alison is responsible for studies on prostate cancer, testicular cancer, lung cancer, terminal illness, the PSA test, screening for bowel cancer, bereavement due to suicide, bereavement due to traumatic death and urinary catheters. Alison was an undergraduate at The London School of Economics, obtained an MA in Health Research at Lancaster University, and completed a PhD at the University of Manchester.

Abi Eccles - DPhil Student/Research Assistant

Abi joined HERG as a research assistant in July 2010 and has since worked on various projects, including Shared Decision MakingAutismJewish Health, and End of Life Care. Abi now works part time with HERG whilst studying for a DPhil in Primary Care funded by the NIHR School for Primary Care Research (NSPCR). Her research explores Multiple Sclerosis, patient-doctor interaction and decisional support needs. Before joining HERG, Abi completed her BSc reading Sociology and Anthropology at Oxford Brookes University. She also spent some time in Madagascar as a research assistant for MSc Primatology students.

Julie Evans - Senior Qualitative Researcher

Julie has been working with HERG since 2000 has worked alone or in partnership with other members of the team on our sections about breastovarian and pancreatic cancerslymphomaleukaemia and caring for someone with a terminal illness. She also conducted a secondary analysis of our cancer interviews for a section on living with and beyond cancer. Julie has ‘buddied’ other members of the team and colleagues from other universities working on our cancer-related sections. Julie has spent most of her working life in the cancer field and has chosen to specialise in qualitative research.

Dr Lisa Hinton - Senior Qualitative Researcher

Lisa joined the Health Experiences Research Group in 2006 to undertake her MRC-funded DPhil in experiences of infertility, which became a section on infertility for Healthtalkonline. Since then she has also completed the section on Experiences of life-threatening illnesses in pregnancy and childbirth. Lisa has particular interests in the information and support needs of those going through treatment for infertility, men’s experiences, the role of Primary Care and more broadly, the role of Internet use in health care. As part of the MRC fellowship, Lisa was seconded to the Health Committee of the House of Commons from September 2009-March 2010.

Dr Jenny Hislop - Senior Qualitative Researcher

Jenny is a Sociologist who joined HERG in October 2008 and is responsible for our section on menopause. Jenny was previously a lecturer at Keele University where she directed the MA in Gerontology programme as well as coordinating and teaching on undergraduate sociology courses. In her current teaching role, Jenny coordinates and lectures on the qualitative research methods programme for the Health Experiences Research Group and for the MSc in Evidence Based Health Care. She is currently researching people’s experiences of atrial fibrillation.

Susan Kirkpatrick - Senior Qualitative Researcher

Susan joined the Health Experiences Research Group in January 2010 to work on a project about experiences of transient ischaemic attack and minor stroke.  Since then she has completed a section about people’s experiences of anti-depressants and another on Living with Asthma. She is currently working on an ESRC funded project exploring ways in which healthtalk interviews might be used to help with improving health care. Susan has a first class honours degree from Oxford Brookes University in Sociology and Educational Studies and an MA (distinction) in Family Research.

Angela Martin - Operations Manager

Angela joined the Health Experiences Research Group as programme co-ordinator for a 5 year, NIHR funded, multi-centre study looking at whether, when and how the NHS should include health experiences in online health information. Previously, Angela coordinated research in the Department of Physiology, Anatomy and Genetics, University of Oxford. Angela obtained her PhD from the University of Birmingham in 1997 for her work on Helicobacter pylori. She undertook post-doctoral work in microbial molecular biology in the Department of Biochemistry, University of Oxford. She also spent some time in the Department of Molecular, Cellular and Developmental Biology, University of Michigan, USA.

Dr Abigail McNiven

Abi joined the Health Experiences Research Group in September 2014. Since then, she has been working on a Healthtalk project interviewing young persons about their experiences of four common skin conditions: acne, eczema, psoriasis and alopecia. Abi obtained her PhD in 2014 from the Department of Geography at Durham University on the topic of pregnancy loss experiences.

Dr Suman Prinjha - Senior Qualitative Researcher

Suman has been a Senior Researcher for the Health Experiences Research Group, based at the University of Oxford, since 2001. She produced our sections on breast screeningbreast cancerDCISepilepsypatients' experiences of intensive carerelatives' experiences of intensive careCIN3 and CGIN (precancerous cervical conditions) and urinary cathethers. Suman is an anthropologist and obtained her PhD in 1999 from the London School of Economics.  Suman's research interests include patients' experiences of breast cancer, intensive care, and South Asian health and cultural identities.

Dr Maria Salinas - Qualitative Researcher

Maria produced Youthhealthtalk.org sections on sexual healthteenage cancerdiabetes type 1long term health conditionshealth and weight and drugs and alcohol and osteoporosis for Healthtalkonline.org. Maria is a social anthropologist and obtained her D.Phil from the University of Oxford in 2000. She has worked in health research, refugee studies and gender relations in the academic, voluntary and business sectors for the last fifteen years.

Ruth Sanders - Projects Delivery Manager

Ruth Sanders joined the group in February 2002. Her role involves the scheduling, training and project management of the research that is published on Healthtalkonline.org and Youthhealthtalk.org. Ruth supports the HERG research team in use of systems, procedures and video techniques. Ruth is also responsible for quality assurance procedures, reviewing all research material every two years and identifying material that needs updating or requires new interviews, to ensure the website’s content adheres to the Information Standard.

Caroline Jordan - Administrator

Vanessa Eade - Project Administrator


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